Assessing health status and quality of life in idiopathic pulmonary fibrosis: which measure should be used?

  • DE VRIES, J
  • SEEBREGTS, A
  • DRENT, M
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Publication date
March 2000
Publisher
Harcourt Publishers Ltd.

Abstract

AbstractMany studies conducted on the health status and quality of life (QOL) of patients with certain chronic diseases have demonstrated that their disease had an impact on their lives. However, less is known about the QOL and health status of patients suffering from idiopathic pulmonary fibrosis (IPF). In the present study, three focus groups of IPF patients (n=10) were run to identify the aspects of QOL or health status that are relevant to this population and to establish which measure is preferable to assess these aspects. The patients completed and discussed the St. George's Respiratory Questionnaire (SGRQ) and the World Health Organization Quality of Life assessment instrument (WHOQOL-100). Results indicated that hobbies/leisure acti...

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