The importance of genomic information for care of individual patients and for the development of knowledge about treatment efficacy is becoming increasingly apparent. This information is probabilistic and involves the use of large data sets to increase the likelihood of detecting low frequency events. Duties and rights of patients with respect to this information have been much discussed, including informed consent to the use of individual information, privacy and confidentiality, rights to know or not to know, and individual ownership of information about themselves. But this is only one side of the information equation. On the other side of the equation are duties of information holders: malpractice and duties to warn, responsibilities of...
According to many scientists and clinicians, genomics is taking on a key role in the field of medici...
Discussions regarding responsible genomic data sharing often center around ethical and legal issues ...
The 1996 Bermuda Principles launched a new era in data sharing, reflecting a growing belief that the...
AbstractThe importance of genomic information for care of individual patients and for the developmen...
AbstractThe importance of genomic information for care of individual patients and for the developmen...
Abstract: The legal duty to protect patient confidentiality is common knowledge amongst healthcare p...
Clinical genome and exome sequencing is currently used in only a small fraction of patients, yet lar...
Clinical genome and exome sequencing is currently used in only a small fraction of patients, yet lar...
In this article, Laurie discusses the impact of generating genetic information, and what the consequ...
Abstract Background Platforms for sharing genomic and phenotype data have been developed to promote ...
Human genomic information is invested with enormous power in a scientifically motivated society. Gen...
Human genomic information is invested with enormous power in a scientifically motivated society. Gen...
Our ability to generate genomic data is currently well ahead of our ability to understand what they ...
In order to study the relationship between genes and diseases, the increasing availability and shari...
According to many scientists and clinicians, genomics is taking on a key role in the field of medici...
According to many scientists and clinicians, genomics is taking on a key role in the field of medici...
Discussions regarding responsible genomic data sharing often center around ethical and legal issues ...
The 1996 Bermuda Principles launched a new era in data sharing, reflecting a growing belief that the...
AbstractThe importance of genomic information for care of individual patients and for the developmen...
AbstractThe importance of genomic information for care of individual patients and for the developmen...
Abstract: The legal duty to protect patient confidentiality is common knowledge amongst healthcare p...
Clinical genome and exome sequencing is currently used in only a small fraction of patients, yet lar...
Clinical genome and exome sequencing is currently used in only a small fraction of patients, yet lar...
In this article, Laurie discusses the impact of generating genetic information, and what the consequ...
Abstract Background Platforms for sharing genomic and phenotype data have been developed to promote ...
Human genomic information is invested with enormous power in a scientifically motivated society. Gen...
Human genomic information is invested with enormous power in a scientifically motivated society. Gen...
Our ability to generate genomic data is currently well ahead of our ability to understand what they ...
In order to study the relationship between genes and diseases, the increasing availability and shari...
According to many scientists and clinicians, genomics is taking on a key role in the field of medici...
According to many scientists and clinicians, genomics is taking on a key role in the field of medici...
Discussions regarding responsible genomic data sharing often center around ethical and legal issues ...
The 1996 Bermuda Principles launched a new era in data sharing, reflecting a growing belief that the...