The experiences of persons diagnosed with epilepsy

M.A. (Clinical Social Work)Abstract: Epilepsy is a chronic, neurological disease and a universal disorder that affects the lives of nearly 50 million people worldwide. People living with epilepsy (PWE) have to deal with many challenges and difficulties in their everyday lives and often require care and support to manage their chronic condition. To this end the role of caregivers is acknowledged, particularly in the context in which this study took place, namely a residential facility in Johannesburg, South Africa. The aim of this study was to explore the experiences of PWE in order to provide further insight into the many challenges they face, as well as the strengths, talents, abilities and skills that they possess. This South African study was qualitative in nature. Seven participants were interviewed using semi-structured interviews. Data was analysed using thematic analysis. The main findings of this study reflect the challenges that PWE experience, particularly with regard to obtaining employment, gaining independence and performing everyday tasks such as driving. Strained interpersonal and familial relationships were also noted. The participants also experienced stigma, discrimination and social isolation in varying forms. This study also found that co-morbid psychiatric disorders are prevalent amongst PWE. The type of care that they receive from the medical practitioners, nurses and caregivers is key in either aiding or inhibiting them from living their lives with purpose and dignity. This study recognised the strengths exhibited by PWE in the coping mechanisms that they used in their daily lives