Exploring novel dimensions of body experience after breast reconstruction

AbstractBackgroundStudies on the post-breast reconstruction period are primarily conducted with questionnaires, focussing on general outcome parameters such as cosmetic result, quality of life or satisfaction. However, to explore how women see, appreciate and behave towards their own bodies, a different research approach is required. In this study, we used an empirical phenomenological design to explore how women experience their body after breast reconstruction in everyday practice.MethodsA qualitative, descriptive phenomenological design was used. A total of 18 semi-structured in-depth interviews were conducted with women who had undergone implant-based breast reconstruction (IBBR, n = 5) and autologous breast reconstruction (ABR, n = 13). The interviews were tape-recorded, transcribed verbatim and subsequently coded and analysed using NVivo, a qualitative data analysis software program.ResultsA framework of six interrelated themes was identified: (1) ‘the cosmetic body, (2) the sensed and touched body, (3) the body in action, (4) the sexual body, (5) awareness and (6) sense of self’. We found that women who have undergone IBBR report relatively similar changes in body experiences on all six themes, whereas women who have undergone ABR report a broad variety in changed body experiences after the reconstruction.ConclusionsThe six identified themes indicate that various dimensions of body experience are at play for women after undergoing breast reconstruction. Women with IBBR have more similar body experiences compared with women who have undergone ABR. This knowledge can be implemented in counselling before surgery and can support shared treatment decisions