Involving Children In Oral Health Research: Are We Doing Enough?

BACKGROUND: Actively involving children in decisions made about them in research is of growing interest. In paediatric dentistry, it is still relatively rare for children to be coresearchers or be involved in clinical feedback. AIMS: To determine existing methods used to engage with children in order to develop and shape research design. To develop a satisfaction tool for paediatric dentistry with children and compare the outcomes to the standard adult survey already in use. MeETHOD: A systematic review done through electronic databases searches for literature on the involvement of children (aged 4-12 years) either in the design of the research question, or in development of the methods. Children attending the Paediatric Dentistry Unit were interviewed to capture their views about the important areas to include in a satisfaction questionnaire. Several versions of the questionnaire were piloted with children, until the final version was deemed acceptable by children. This was then validated against the standard survey. RESULTS: The systematic review reported four examples of children as researchers with insufficient data about the best method to be used. The final questionnaire contained 7 questions and a comments section, using writing and facial images to record children’s views. The questionnaire was different in content and interest to an adult version. Differences were noted when compared to standard are questions text, type, design, response and outcome. RECOMMENDATION: More involvement is needed for children in research in paediatric dentistry. Focus groups/ interviews in combination with questionnaires may be an effective method. The satisfaction scale developed can be used for service improvement, however multicentre, larger sample studies are required for testing and modification