Defining and using experience goals to enhance patient agency in spinal cord injury rehabilitation

This paper explores the process of defining and using experience goals as part of a design-led research methodology to enhance patient agency within spinal cord injury (SCI) rehabilitation. It describes the work and findings from the first year of doctoral level research. Information derived from a literature review and an ethnographic study of a host spinal injury unit (SIU) over 10 months was analysed thematically and discussed with a variety of stakeholders and professionals from medicine and design. This analysis led to the development of five experience goals, with the intention of their facilitating a participatory design process to enhance the rehabilitation experience through providing a better shared vision for patients, carers and staff