[[alternative]]A Research On Illness--Accompanying Experience Of Main Caregivers for Patients of Persist Vegetables State

[[abstract]] 本研究以植物人主要照顧者生病陪伴時之歷程轉變與經驗感受為探討主題，透過詮釋現象學方法的指引，以立意取樣之方式，分別在台北縣、台南縣以及屏東縣選取三位研究參與者，在半結構式問卷的深度訪談後，獲取文本資料，並進行視域化的綜合分析工作。研究結果部分，分別針對主要照顧者在陪病處境下的身心負荷、以及存在性關係上等次題，進行經驗構面的深描與詮解，以呈現植物人主要照顧者陪伴心理歷程轉變的具體意涵。 本研究發現主要照顧者在照顧植物人的生活課題上面臨到：生病陪伴歷程的轉變與接應以及存在性關係的顯露與建置等兩大課題，前者發現初始剛邁入生活丕變的處境之時，主要照顧者除了需承受內心失落的悲傷之外，其本身亦必須因應付出照顧工作隨之而來的身體負荷，其中包含有不同關懷程度時的照料工作；此時除了身體負荷加重以外，主要照顧者還會產生時間與空間感的丕變，接著便是在面對漫漫長日的照顧處境時，家瞬間成為了有如窄縮感的人間煉獄；並在此衍伸出在時間三向度上照顧者自身與植物人在時空序列上的交會。後者研究發現，在深入探討植物人與主要照顧者間存在性關係之時，在文本中發現三大主軸概念，分別為：照顧關係的當然存在、文化關係下開顯的照顧底蘊、社會關係的再連結。照顧關係的當然存在反應了照顧者與被照顧者真實的照顧存在性景象，除了照顧的存在性被看見外，文化關係對於照顧存在性亦有著深厚的影響，然而不可諱言的是，植物人家庭不能只活在以家庭為軸心的世界裡，必然的必須與社會產生連結，他們必須在社會裡生存，找到自身與社會間社會關係的重置。 整體而言，主要照顧者陪病處境是呈現動態變化的模式，每個主體所呈現的經驗構面亦有不同。此外，本研究建議安樂死的倫理議題、宗教信仰的影響以及更為深入的社會福利策略等等，可作為後進另一研究領域的參考與選擇。[[abstract]] The research is to study the course transition and experience when main carers accompany vegetables through the guidance of interpreting phenomenology and purposive sampling, selecting three research participants from Taipei County, Tainan County, and Pingtung County respectively. After depth interview of semi-structured questionnaire, text information was obtained and visualized comprehensive analysis was conducted. As for research results, it was aimed at the mental and physical burden of main carer under the condition of accompanying patients, and existence correlation to conduct thoughtful description and interpretation in experience so as to present the concrete meaning of accompanying course transition of main carers for vegetables. The research found that when main carers took care of vegetables’ life, they faced: two crucial issues, namely, accompanying course transition and readiness; display and construction of existence correlation. It was found from the former that main carers needed to bear not only innermost depression and sorrow in the initial situation of great life change, but also physical burden due to care works, including different extents of care works; besides increasing physical burden at this time, main carers also had great changes in time and space, and then home became a narrow living hell while facing permanent situation of care works; the connection between carers in three-dimensions of time and vegetables in the sequence of space-time is derived accordingly. It was found from the latter that when discussing the existence correlation between main carers and vegetables thoroughly, three significant concepts in texts were: certain existence of care relationship, inside information of cultural relationship and re-connection of social relationship. The certain existence of care relationship revealed the real scene of care existence between carers and patients. In addition, cultural relationship also had a deep impact on care existence. However, no one can deny that the family with a vegetable cannot just live in the world of the family, and it must connect with the society. They have to live in the society and find the replacement of social relationship between themselves and the society. As a whole, the situation of main carer who accompanies patients presented the mode of dynamic changes and every substance showed different experiences. Moreover, the research proposed the ethic issue of euthanasia, the influence of religious belief, and deeper social welfare policies as references and choices for others of another study field