Quality of life of patients with Chronic rheumatic diseases

Kronična revmatska obolenja v veliki meri vplivajo na z zdravjem povezano kakovost življenja. Cilj zdravljenja naj ne bi bil samo lajšanje simptomov in preprečevanje z boleznijo povezanih zapletov, temveč tudi izboljšanje kakovosti življenja. Kronična revmatska obolenja se izražajo z zelo pestro klinično sliko, ki se razlikuje od pacienta do pacienta, prav zato je s strani patronažne medicinske sestre potreben individualen in celosten pristop k pacientu, da mu omogočimo, da lahko dosega največjo možno raven kakovosti življenja. Namen specialističnega dela je predstaviti kakovost življenja pacientov s kroničnim revmatskim obolenjem in vlogo patronažne medicinske sestre. Metodologija raziskovanja: Raziskava je temeljila na kvantitativni metodologiji. Kot raziskovalni instrument smo uporabili anketni vprašalnik PROMIS HAQ, s katerim smo pridobili samooceno opravilnih zmožnosti pacientov z revmatskim obolenjem. Anketirali smo 74 pacientov s kroničnim revmatskim obolenjem iz območja Maribora. Pridobljene podatke smo statistično obdelali s pomočjo računalniških programov Microsoft Exel in SPSS 20,0. Rezultati: Ugotovili smo, da je splošna gibljivost anketiranih pacientov s kroničnim revmatskim obolenjem zmerna. Samooskrba pacientov s kroničnim revmatskim obolenjem v domačem okolju je v povprečju 50 %, prav tako smo ugotovili, da je odvisnost anketiranih pacientov s kronično revmatsko boleznijo od pripomočkov in/ali druge osebe v povprečju 50 %. Čas trajanja kronične revmatske bolezni vpliva na kakovost življenja pacientov negativno v kar 74 %. Zelo nezadovoljnih je s svojo kakovostjo življenja le 30 % anketiranih pacientov s kroničnim revmatskim obolenjem. Sklep: Kroničnim revmatskim pacientom se je kakovost življenja po odkritju bolezni v 74 % obrnila na slabše, kar je pretresljiv podatek. Zelo pomembno je kronično revmatsko obolenje pravočasno prepoznati in zdraviti. Osnovna naloga patronažne sestre je edukacija pacienta in svojcev v smislu lajšanja bolečine, ohranjanju psihične in fizične kondicije, kar pa zagotavljanja čim višjo samooskrbo pacienta in kakovost življenja.Chronic rheumatic diseases largely affect health-related quality of life. The goal of treatment is not only to relieve symptoms and prevent disease-related complications, but also to improve the quality of life. Chronic rheumatic diseases manifest themselves in very diverse clinical pictures, which vary from patient to patient. So it is necessary that community nurse‘s approach to each patient is individual and holistic. That enables patients to reach the highest possible level of quality of life. The purpose of this work is to present the patient’s quality of life and the role of a community nurse. Research methods: The study is based on quantitative methodology. As a research tool we applied a questionnaire PROMIS HAQ, with which we acquired self-assessment of the ability for performing daily activities of patients with rheumatic disease. We surveyed 74 patients with chronic rheumatic disease in Maribor area. Acquired data were statistically analyzed using computer programs Microsoft Excel and SPSS 20.0. Results: We found that the overall mobility of surveyed patients with chronic rheumatic disease is moderate. Self-care in a domestic environment is able to perform on average 50% of patients with chronic rheumatic disease. We also found out that the dependence of surveyed patients with chronic rheumatic disease of the devices and/or other persons is on average 50%. The duration of chronic rheumatic disease affects the quality of life negatively in 74% of patients. 30% of questioned patients with chronic rheumatic disease are very dissatisfied with their quality of life. Conclusion: The quality of life after diagnosing the chronic rheumatic disease grows worse with 74% of patients, which is a shocking figure. It is very important to recognize and start treating chronic rheumatic disease early. The basic task of the community nurse is to educate patients and their families about pain relief, preservation of mental and physical fitness, and also to ensure the highest possible patient’s quality of life and self-care ability