Palliative care of chronically ill patients in their home environment

Paliativna oskrba si v slovenskem prostoru nekako utira pravo pot. Ljudje se še vedno izogibajo tej temi, kar je velika ovira pri razvoju te nujno potrebne oskrbe. Poznavanje paliativne oskrbe in razumevanje procesa umiranja ter žalovanja je osnova za vsako patronažno medicinsko sestro, ki bolnika s svojo tankočutnostjo in pravilno terapevtsko komunikacijo pripravi do odprtega pogleda na smrt. Namen diplomske naloge je ugotoviti kako so medicinske sestre usposobljene in pripravljene za tovrstno zdravstveno nego, kako pogosto sploh opravljajo paliativno zdravstveno nego in s kakšnimi težavami se srečujejo pri tem. V zadnjem delu diplomske naloge je predstavljena raziskovalna naloga, ki je bila izvedena domu dr. Adolfa Drolca Maribor. Rezultati so pokazali, da se patronažne medicinske sestre dnevno srečujejo s paliativno zdravstveno nego, saj je 52,2% patronažnih medicinskih sester podalo ta odgovor, ostale pa tedensko ali mesečno. Od vseh anketiranih patronažnih medicinskih sester jih 80% meni, da so strokovno dovolj izobražene, da pa jim vseeno manjkajo smernice glede takšne oskrbe, saj bi 40% anketiranih patronažnih medicinskih sester želelo še več strokovnih smernic paliativne oskrbe. Čeprav si paliativna zdravstvena nega šele utira pot v slovenski prostor, so patronažne medicinske sestre, hkrati pa tudi bolniki in svojci o tem že kar dobro osveščeni, mnogi med njimi pa tudi vzpostavijo stik s Slovenskim društvom hospic.Palliative care is still making its way into Slovenian area. People are still avoiding this issue, which is a major obstacle in the development of this urgently needed type of care. Knowledge and understanding of palliative care, dying and grief process is the basis for every health visitor nurse, which uses her sensibility and proper therapeutic communication to prepare the patient for an open view of death. The purpose of the thesis is to determine how nurses are trained and prepared for this kind of care, how often palliative care is carried out and what problems they face in doing so. This paper presents a research work, which was carried out with forty health visitor nurses, employed in Dr. Adolf Drolc Maribor Health Centre. Results have shown that 52,2% of health visitor nurses meet with palliative care daily, according to survey answers, the others do so on a weekly or monthly basis. Of all the surveyed health visitor nurses, 80% feel they have enough professional skills, but they still lack guidance on such care, since 40% of respondents wanted more professional palliative guidelines. Although palliative care still paves its way in Slovenia, there is great awareness about it among health visitor nurses, patients and relatives. Many of them even establish contact with the Slovenian hospic society