The importance of health educating work with the relatives of patients with epilepsy

V diplomskem delu smo predstavili pomen zdravstvenovzgojnega dela s svojci pacientov z epilepsijo. Namen diplomskega dela je v teoretičnem delu predstaviti epilepsijo, pomen zdravstvenovzgojnega dela medicinske sestre in komunikacije medicinske sestre s svojci pacientov z epilepsijo. V empiričnem delu diplomskega dela smo predstavili raziskavo, ki smo jo izvedli med svojci pacientov z epilepsijo v ambulanti za Splošno nujno medicinsko pomoč v Ljubljani. Raziskava je bila izvedena v obdobju od 15. 06. 2008 do 15. 09. 2008, vključenih pa je bilo 95 svojcev. Podatke smo pridobili na podlagi anketnega vprašalnika. Z raziskavo smo želeli ugotoviti ali so svojci dovolj poučeni o bolezni in načinu življenja s to boleznijo, kdo jih je seznanil z boleznijo, kako bolezen svojca vpliva na njihovo kakovost življenja in s kom se lahko pogovorijo, kadar se znajdejo v stiski in podobno. Zanimalo nas je tudi, ali bi si želeli biti poučeni o bolezni že v času hospitalizacije njihovega svojca in ali bi jim ustrezalo izobraževanje v smislu šole za paciente z epilepsijo in njihove svojce. Rezultati raziskave so pokazali, da se osveščenost svojcev pacientov z epilepsijo v zadnjih letih ni bistveno spremenila oziroma izboljšala. Pomen zdravstvenovzgojnega dela medicinske sestre je še vedno v ozadju. Dejstvo pa je, da bi medicinske sestre z zdravstvenovzgojnim delom lahko bistveno prispevale k boljši kakovosti življenja tako pacientov z epilepsijo kot njihovih svojcev.The thesis presents the importance of health educating work with the relatives of patients with epilepsy. The purpose of the thesis in the theoretical part is to present epilepsy, the meaning of health educating work of the nurse and communication of the nurse with the relatives of patients with epilepsy. In the empirical part of the thesis we have presented a research conducted among relatives of patients with epilepsy in the dispensary for General emergency aid in Ljubljana. The research that included 95 relatives was conducted in the period from 15. 06. 2008 to 15. 09. 2008. The data was gathered on the basis of a questionnaire. With the help of this research we wanted to ascertain if the relatives are educated enough about the disease and the way of living with this disease, who acquainted them with this disease, what is the effect of the diseased relative to their quality of life and who can they talk to in case of distress etc. We were interested if they would want to be informed about the disease in the time of hospitalization of their relative and if they would be interested in education in the form of a school for patients with epilepsy and their relatives as well. The results of the survey have shown that the acquaintance of relatives with this disease has not changed or improved in the last few years. The importance of health educating work of the nurse is still in the background. However, nurses with their health educating work would in fact significantly contribute to a better quality of life of patients with epilepsy and their relatives