Stakeholders' interviews - citizen engagement in health data secondary use and sharing: Summary report

Within the framework of their participation in the Joint Action “Towards a European Health Data Space”, the Health Data Hub, Sciensano and the NHS Confederation conducted 53 semi-structured interviews with stakeholders from their national health data ecosystem. The interviewees were asked about two main topics: their experiences, perceptions, and needs and expectations regarding data, particularly from a European perspective; their knowledge and projection of the perceptions and role that citizens could play in the governance of a European health data space. The results will feed into the citizens’ e-consultation that will be organised at the end of 2021 until the beginning of 2022 in Belgium, France and the United Kingdom and more generally in the work conducted by the three institutions on citizen engagement for the Joint Action.