A hidden issue: Exploring the lived experiences of women with HIV-associated neurocognitive challenges using a disability framework

Affiliated institutions include: University of KwaZulu-Natal (S. Nixon), University of Toronto (E. Collins, S. Nixon)Purpose: The purpose of this article is to present the results of an exploratory study which used the World Health Organization's (WHO) International Classification of Functioning, Disability and Health (WHO-ICF) framework to explore the experiences of women living with HIV-associated neurocognitive challenges. Methods: An interpretive, qualitative research study was completed. Key informant interviews were conducted with eight (8) women with HIV-associated neurocognitive challenges. The data were collected through in-depth, semi-structured, one-on-one interviews. Data were analyzed using an inclusive approach. Results: Impairments and participation restrictions were perceived as having a much larger impact on the day to day activities of individuals living with HIV-associated neurocognitive challenges than activity limitations. Environment and personal factors such as stigma, motherhood, attitude, acted as important barriers and facilitators to disability and functioning. Conclusion: Neurocognitive challenges play a significant role in the day-to-day lives of women living with HIV and therefore need to be addressed by rehabilitation professionals. The WHO-ICF provides a comprehensive lens through which rehabilitation professionals can develop interventions and treatment plans for this population and may help to monitor the efficacy of intervention strategies