Principles for Data Standards

Establishing common standards for healthcare data and metadata is a fundamental requirement to enable health data research to improve people’s lives. This document was published in June 2020 and sets out an approach to adopting data standards for health data research concerning structured electronic health records data only. HDR UK proposes that organisations collect, store and provide their datasets according to defined open standards through the UK Alliance and other HDR UK infrastructure including the Hubs and research sites. Initial principles have been developed in consultation with data officers across HDR UK’s community. These principles are encouraged for organisations that are participating in any part of HDR UK’s activities, including contracted services or activities managed by members of the HDR UK community