ARDC Leadership Series: Sharing Sensitive and Identifiable Human Data

Sharing sensitive data between industry and research sectors can be challenging. Trust, risk management, competitive advantage and intellectual property rights are all significant hurdles to navigate when sharing sensitive data. Sensitive data can’t be shared openly for legal and/or ethical reasons and is often subject to specific conditions when reused due to the significant risk it poses to the research subjects (humans, endangered species, etc). The ability to share sensitive data securely opens up enormous opportunities for research and industry. Industry can use data to drive innovation and translation at scale, while the research sector can gain significant new insights to understand human health and wellbeing. Providing solutions for sharing sensitive data will reduce delays in time-limited projects, increase the return on investment of research, create positive impacts on project outputs, and benefit the Australian public as a whole. The event was aimed at persons responsible for strategic direction, decision-making, and resource allocation within a research organisation. The event focused on challenges by highlighting benefits, identifying blockers and enablers, and testing the appetite for a coordinated approach among Australian research organisations, using a specific exemplar case study. See the presentation recording on YouTube