This empirical article explores the dynamics of exchange and reciprocity between cohorters, that is, study organizers, and cohortees, that is, study participants. Drawing on literature on bioeconomy and valuation, we analyze cohortees' expectations in return for the "clinical labor" they perform in the pilot phase of a Swiss precision public health study. Based on an ethnography of this cohort and data from seven focus groups with cohortees (n = 37), we identified four positions: (1) the good citizen participant, (2) the critical participant, (3) the concerned participant, and (4) the self-oriented participant. These reveal that cohortees' participation, still framed in altruistic terms, nevertheless engages expectations about reciprocal ob...
Abstract Background The meaningful sharing of health data between different stakeholders is central ...
Background Public involvement in research is considered good practice by European funders; however, ...
Co-creation in health research is a rising trend, as funding bodies increasingly favor research that...
This paper explores enactments of participation in two Swiss biobanking configurations, a cohort bio...
BACKGROUND A large-scale national cohort aiming at investigating the health status and determinan...
OBJECTIVES This article aims to measure the willingness of the Swiss public to participate in per...
This paper focuses on Precision Public Health (PPH), described in the scientific literature as an ef...
Contains fulltext : 245761.pdf (Publisher’s version ) (Open Access
Objectives This article aims to measure the willingness of the Swiss public to participate in person...
The COVID-19 pandemic has spotlighted the importance of high-quality data for empirical health resea...
Introduction:; Health research is gradually embracing a more collectivist approach, fueled by a new ...
BACKGROUND: There is a growing interest in aggregating more biomedical and patient data into large h...
This paper reports survey findings on the Swiss public's willingness, attitudes, and concerns regard...
In Switzerland, in spite of a positive attitude towards organ donation, the population seems to over...
This article explores how promises are forged in the emerging techno-scientific field of ‘personaliz...
Abstract Background The meaningful sharing of health data between different stakeholders is central ...
Background Public involvement in research is considered good practice by European funders; however, ...
Co-creation in health research is a rising trend, as funding bodies increasingly favor research that...
This paper explores enactments of participation in two Swiss biobanking configurations, a cohort bio...
BACKGROUND A large-scale national cohort aiming at investigating the health status and determinan...
OBJECTIVES This article aims to measure the willingness of the Swiss public to participate in per...
This paper focuses on Precision Public Health (PPH), described in the scientific literature as an ef...
Contains fulltext : 245761.pdf (Publisher’s version ) (Open Access
Objectives This article aims to measure the willingness of the Swiss public to participate in person...
The COVID-19 pandemic has spotlighted the importance of high-quality data for empirical health resea...
Introduction:; Health research is gradually embracing a more collectivist approach, fueled by a new ...
BACKGROUND: There is a growing interest in aggregating more biomedical and patient data into large h...
This paper reports survey findings on the Swiss public's willingness, attitudes, and concerns regard...
In Switzerland, in spite of a positive attitude towards organ donation, the population seems to over...
This article explores how promises are forged in the emerging techno-scientific field of ‘personaliz...
Abstract Background The meaningful sharing of health data between different stakeholders is central ...
Background Public involvement in research is considered good practice by European funders; however, ...
Co-creation in health research is a rising trend, as funding bodies increasingly favor research that...