Family members' experiences of a diary kept during their sick relative's stay within the intensive care setting.

ABSTRACT Background: A diary often helps the critically ill patient better to understand her/his illness and fill gaps in memory regarding their experiences in the ICU. To date there appears to be a lack of research that specifically focuses on family members’ experiences of the use of a diary within the intensive care setting. Aim: The aim of the study was to explore how family members experienced a diary kept during their sick relative’s stay in the ICU. Methodology: A qualitative methodology and, in particular, a hermeneutic approach were deemed to be appropriate for the study. Eleven participants were interviewed relating to nine diaries. Collected data have been analysed using hermeneutic interpretation inspired by Gadamer. Findings: Family members experienced that the diary sustained strengthened and deepened the connection to their sick relative and confirmed the presence of family members at bedside. The diary worked as a forum for mutual exchange of information between nurses and family members which led to a feeling of being united with the nurses in understanding. This in turn created a sense of togetherness and the family members didn’t feel neglected. In addition the diary was experienced as an implied hope that the outcome of the ICU stay would be good, thereby lending strength to worried family members. Conclusion: The diary was experienced as a tool that enhanced family members’ wellbeing