INTRODUCTION: The Haemophilia Activities List (HAL) and paediatric HAL assess self-reported limitations in various daily activities. To reduce patient burden, shorter versions of the pedHAL (22 items) and HAL (18 items) have been developed. AIM: This study aimed to determine the agreement between the pedHAL/HAL(full) and pedHAL/HAL(short) and construct validity and internal consistency of the pedHAL(/) HAL(short) in persons with haemophilia (PWH). METHODS: A cross-sectional secondary analysis of the Hemophilia in the Netherlands-6 national survey was performed. Adult and paediatric PWH completed the original pedHAL/HAL(full) , from which pedHAL(/) HAL(short) were derived. Score differences between the original and short versions were calcul...
INTRODUCTION: The Hemophilia Joint Health Score (HJHS) was developed to detect early changes in join...
Treatment adherence in haemophilia is strongly associated with quality of life and the cost-benefit ...
Introduction: Haemophilia Joint Health Score (HJHS) is the most sensitive validated score for physic...
Introduction: The Haemophilia Activities List (HAL) and paediatric HAL assess self-reported limitati...
Introduction: The paediatric Haemophilia Activities List (pedHAL) was developed to measure activitie...
Introduction: The Paediatric Haemophilia Activities List (pedHAL) assesses self-reported limitations...
Introduction: Monitoring clinical outcome in persons with haemophilia (PWH) is essential in order to...
Health-related quality of life (HRQoL) assessment is recognized as an important outcome in the evalu...
Background: The Patient-Reported Outcomes Measurement Information System (PROMIS) Profile-29 questio...
BACKGROUND: The aim of this study was to provide an Italian version of the Haemophilia Activities Li...
Joint bleeds in persons with haemophilia (PWH) result in haemophilic arthropathy, which has an impac...
Background: Haemophilia is a hereditary disease caused by deficiency of clotting factor VIII or IX. ...
Objectives: To describe self-reported activity using the Haemophilia Activity List (HAL) for Swedish...
IntroductionIt is essential to assess the health-related quality of life outcomes of boys with haemo...
Treatment adherence in haemophilia is strongly associated with quality of life and the cost-benefit ...
INTRODUCTION: The Hemophilia Joint Health Score (HJHS) was developed to detect early changes in join...
Treatment adherence in haemophilia is strongly associated with quality of life and the cost-benefit ...
Introduction: Haemophilia Joint Health Score (HJHS) is the most sensitive validated score for physic...
Introduction: The Haemophilia Activities List (HAL) and paediatric HAL assess self-reported limitati...
Introduction: The paediatric Haemophilia Activities List (pedHAL) was developed to measure activitie...
Introduction: The Paediatric Haemophilia Activities List (pedHAL) assesses self-reported limitations...
Introduction: Monitoring clinical outcome in persons with haemophilia (PWH) is essential in order to...
Health-related quality of life (HRQoL) assessment is recognized as an important outcome in the evalu...
Background: The Patient-Reported Outcomes Measurement Information System (PROMIS) Profile-29 questio...
BACKGROUND: The aim of this study was to provide an Italian version of the Haemophilia Activities Li...
Joint bleeds in persons with haemophilia (PWH) result in haemophilic arthropathy, which has an impac...
Background: Haemophilia is a hereditary disease caused by deficiency of clotting factor VIII or IX. ...
Objectives: To describe self-reported activity using the Haemophilia Activity List (HAL) for Swedish...
IntroductionIt is essential to assess the health-related quality of life outcomes of boys with haemo...
Treatment adherence in haemophilia is strongly associated with quality of life and the cost-benefit ...
INTRODUCTION: The Hemophilia Joint Health Score (HJHS) was developed to detect early changes in join...
Treatment adherence in haemophilia is strongly associated with quality of life and the cost-benefit ...
Introduction: Haemophilia Joint Health Score (HJHS) is the most sensitive validated score for physic...