Add to ORKGObjective: The study investigates the impact of Neurofibromatosis type 1 on the families, specially focusing on the socio- demographic factors such as age & gender of NF1 children, total number of children in the household, monthly income, employment status & marital status of parents on the Total family Stress, Distress Scale, Health related quality of life & Coping strategies. Method: In this cross sectional study design, the research instruments such as Impact on Family Scale (FABEL), SF 12, Distress Thermometer, & CODI were used. Questionnaires were answered by the heterogeneous sample of 66 parents of NF1 children
Background: Neurofibromatosis Type 1 (NF1) is a common autosomal disorder; the criteria for the diag...
Neurofibromatosis Type 1 (NF1) is a dominantly inherited disorder (births incidence: 1/3000) with a ...
Objective This descriptive cross-sectional study aimed to determine how cognitive, disease, and envi...
Objective To compare parental adjustment, social support, and family functioning between families of...
Background: Neurofibromatosis 1 (NF1) is a complex and multifaceted neurocutaneous syndrome with man...
Background: Neurofibromatosis 1 (NF1) is a complex and multifaceted neurocutaneous syndrome with man...
Overview of Project: Two focus groups were conducted with parents/caregivers of children with NF1 to...
International audienceThe impact of the Neurofibromatosis type 1 (NF1) on cognition have been subjec...
From PubMed via Jisc Publications RouterHistory: received 2021-02-22, revised 2021-05-17, accepted 2...
OBJECTIVE: To establish the prevalence and incidence of symptoms and complications in chi...
BACKGROUND: Patient engagement is increasingly recognized as a valuable, essential aspect of Neurofi...
Abstract Neurofibromatosis type 1 (NF1) is a genetic, autosomal dominant multi-organ disease charact...
Individuals with neurofibromatosis type 1 (NF1) and plexiform neurofibromas (PNs) have a higher risk...
Neurofibromatosis Type 1 (NF1, von Recklinghausen’s disease) is among the more common autosomal domi...
Neurofibromatosis Type 1 (NF1) is a dominantly inherited disorder (births incidence: 1/3000) with a ...
Background: Neurofibromatosis Type 1 (NF1) is a common autosomal disorder; the criteria for the diag...
Neurofibromatosis Type 1 (NF1) is a dominantly inherited disorder (births incidence: 1/3000) with a ...
Objective This descriptive cross-sectional study aimed to determine how cognitive, disease, and envi...
Objective To compare parental adjustment, social support, and family functioning between families of...
Background: Neurofibromatosis 1 (NF1) is a complex and multifaceted neurocutaneous syndrome with man...
Background: Neurofibromatosis 1 (NF1) is a complex and multifaceted neurocutaneous syndrome with man...
Overview of Project: Two focus groups were conducted with parents/caregivers of children with NF1 to...
International audienceThe impact of the Neurofibromatosis type 1 (NF1) on cognition have been subjec...
From PubMed via Jisc Publications RouterHistory: received 2021-02-22, revised 2021-05-17, accepted 2...
OBJECTIVE: To establish the prevalence and incidence of symptoms and complications in chi...
BACKGROUND: Patient engagement is increasingly recognized as a valuable, essential aspect of Neurofi...
Abstract Neurofibromatosis type 1 (NF1) is a genetic, autosomal dominant multi-organ disease charact...
Individuals with neurofibromatosis type 1 (NF1) and plexiform neurofibromas (PNs) have a higher risk...
Neurofibromatosis Type 1 (NF1, von Recklinghausen’s disease) is among the more common autosomal domi...
Neurofibromatosis Type 1 (NF1) is a dominantly inherited disorder (births incidence: 1/3000) with a ...
Background: Neurofibromatosis Type 1 (NF1) is a common autosomal disorder; the criteria for the diag...
Neurofibromatosis Type 1 (NF1) is a dominantly inherited disorder (births incidence: 1/3000) with a ...
Objective This descriptive cross-sectional study aimed to determine how cognitive, disease, and envi...