Newborn screening (NBS) is an important part of public healthcare systems in many countries. The provision of information to parents about NBS is now recognised as an integral part of the screening process. Informing parents on all aspects of screening helps to achieve the benefits, promote trust and foster support for NBS. Therefore, policies and guidelines should exist to govern how the information about NBS is provided to parents, taking into account evidence-based best practices. The purpose of our survey was to explore whether any legally binding provisions, guidelines or recommendations existed pertaining to the provision of information about NBS to parents across Europe. Questions were designed to determine the regulatory process of ...
[À l'origine dans / Was originally part of : CRDP - Droit, biotechnologie et rapport au milieu
ABSTRACT Purpose: to assess the knowledge of mothers about the heel prick test, develop contents on...
Neonatal screening (NBS) was initiated in Europe during the 1960s with the screening for phenylketon...
International audienceNewborn screening (NBS) is an important part of public healthcare systems in m...
Knowledge about newborn screening (NBS) is an important factor for parents to make an informed decis...
Background: Participation in the UK Newborn Bloodspot Screening Programme (NBSP) requires parental c...
Trabalho Final de Mestrado Integrado, Ciências Farmacêuticas, Universidade de Lisboa, Faculdade de F...
The analysis in this part of the report is grounded in the rights-based Code of Rights, and takes in...
Background: The current neonatal screening program ("the heel prick") involves taking a few drops of...
Newborn screening consists of taking a few drops of blood from a baby's heel in the first week of li...
OBJECTIVES:Parental consent for the participation of their neonate in neonatal research is influence...
Objective to explore mothers’ accounts of screening newborn babies to increase our understanding of...
Decision-makers need to make choices to improve public health. Population-based newborn screening (N...
Decision-makers need to make choices to improve public health. Population-based newborn screening (N...
[À l'origine dans / Was originally part of : CRDP - Droit, biotechnologie et rapport au milieu
ABSTRACT Purpose: to assess the knowledge of mothers about the heel prick test, develop contents on...
Neonatal screening (NBS) was initiated in Europe during the 1960s with the screening for phenylketon...
International audienceNewborn screening (NBS) is an important part of public healthcare systems in m...
Knowledge about newborn screening (NBS) is an important factor for parents to make an informed decis...
Background: Participation in the UK Newborn Bloodspot Screening Programme (NBSP) requires parental c...
Trabalho Final de Mestrado Integrado, Ciências Farmacêuticas, Universidade de Lisboa, Faculdade de F...
The analysis in this part of the report is grounded in the rights-based Code of Rights, and takes in...
Background: The current neonatal screening program ("the heel prick") involves taking a few drops of...
Newborn screening consists of taking a few drops of blood from a baby's heel in the first week of li...
OBJECTIVES:Parental consent for the participation of their neonate in neonatal research is influence...
Objective to explore mothers’ accounts of screening newborn babies to increase our understanding of...
Decision-makers need to make choices to improve public health. Population-based newborn screening (N...
Decision-makers need to make choices to improve public health. Population-based newborn screening (N...
[À l'origine dans / Was originally part of : CRDP - Droit, biotechnologie et rapport au milieu
ABSTRACT Purpose: to assess the knowledge of mothers about the heel prick test, develop contents on...
Neonatal screening (NBS) was initiated in Europe during the 1960s with the screening for phenylketon...