The Development and Dissemination of a Documentary on Autism and Aging

Autism Spectrum Disorder (ASD) across the lifespan is an under researched and underrepresented subject even though the current autism population has an approximately 1 - 2% prevalence rate in North America and in some parts of the world such as Europe and Asia. The majority of research, support, and treatment has been devoted to younger individuals with ASD, resulting in its perception as a childhood disorder. Therefore, much is unknown about prognosis, support services, and future planning for individuals and family caregivers for this population across the lifespan. The purpose of this master's project was to increase understanding and create awareness through the development and dissemination of a documentary about autism and aging. Three families and three professionals were interviewed on film, which was used to develop the documentary film. In addition, eleven viewers were recruited to assess the film and provide feedback via digital survey. Survey results were analyzed to identify what respondents learned from the film, what they felt was missing, any suggestions they might have for serving this population and other comments or feedback they wanted to express. Outcomes of this analysis highlighted that respondents learned about higher prevalence, a need for more services and family concerns and challenges were higher than expected. Also, suggestions were that more information regarding current services, perspectives of older adults and diversity examples would be helpful in future projects. Respondents also felt that planning, early discussion, and expansion of social support services and public education are helpful to support this population. This feedback indicates that much is still unknown and much more research and awareness is required to assist individuals and families with ASD