Systemic Lupus Erythematosus: Correlation between Sensory Knowledge, Self-efficacy, Preventive Action towards Trigger Factors, Self-care Practice and Quality of Life

Background: Systemic Lupus Erythematosus (lupus) and its complications could lower individual’s health-related quality of life (HRQOL). Self-care is highly needed to build independency and sustain self-involvement in lupus management. People with lupus need to have proper sensory knowledge and high self-efficacy for implementing optimal preventive action towards trigger factors and self-care practice at home. This study aims to explain the correlation between sensory knowledge, self-efficacy, preventive action towards trigger factors, self-care practice and HRQOL in people with lupus. Methodology: This is a cross-sectional study mixing the model of Self-Care and Precede Proceed. Population was all lupus patients doing regular check up in Rheumatology Unit of Dr. Soetomo Hospital in the period of October-December 2014. Sample size was 36 chosen by total sampling. Independent variables: sensory knowledge, self-efficacy, preventive action towards trigger factors and self-care practice; dependent variable: HRQOL. Instruments used were ODAPUS-HEBI and LUPUSPRO. Data analysis was using regression test; α≤0.05. Result: 36 respondents participated, all were females. Age range was 20-44 years old. Mostly were high school graduates, married and still actively working. Disease duration was 0.5 – 12 years. Most respondents have high sensory knowledge and self-efficacy; optimum preventive action towards trigger factors and self-care practice, but HRQOL was not optimal. All data were normally distributed. Only sensory knowledge proved to be linear with HRQOL. There was a weak significant correlation identified between sensory knowledge and HRQOL (r=0.344, p=0.040); while self-efficacy, preventive action towards exposure and self-care practice proved to have no correlation with HRQOL (p>α). Conclusion: Sensory knowledge is correlated with HRQOL in people with lupus. Self-efficacy, preventive action towards trigger factors and self-care practice were proved to have no correlation