A documentary design report on a caregiver of the physically and mentally disabled- The case of a patient with severe Cerebral Palsy

[[abstract]]本創作主要探討身障者與照顧者之間的關係。生母懷胎十月誕下嬰孩，第一時刻眾人欣喜若狂，為新生命降世感到興高采烈；不過上天與部分眾生開玩笑，隨著孩子成長漸漸的露出特徵，或者後天影響導致身心不健全，譬如因為黃疸引發高燒病狀，影響嬰幼兒後續身、心發展，嚴重影響神經系統甚至是智力。 筆者本次紀錄片創作，受訪者即是多重重度腦性麻痺患者的主要照顧者、陳銘哲先生的姊姊—陳秀玉小姐。自17歲開始，秀玉小姐帶著銘哲上學、打理生活、娛樂等，儘管有一百萬個不方便也從不喊累。手足間在生命歷程中互相扶持、成長是理所當然的，亦可謂一種默契，秀玉所有的努力讓銘哲有了存在的目的及生命意義，譬如啟發他對讀書的興趣，甚至在物理治療師的建議下接觸地板滾球，使銘哲從此成為地板滾球的死忠愛好者，更是當今臺灣地板滾球三大國手之一。 眾人說如果金錢得以解決，問題勢必相對較小；但牽連另一個體，極可能因照顧者疏乎引發另類問題。多少照顧者能時刻陪伴在側？一方面必須日夜照料，另一方面必須負擔經濟，兩頭燒的蠟燭究竟如何取捨？究竟換來什麼結果？目光聚集在身障者，而幕後的照顧者又是如何？透過紀錄片的鏡頭更加認識照顧者吧。 This documentary is mainly discussing about the relationship between the disabled and the caregiver. After 10 months of hard and difficult times, a new born comes into this world which should bring joy and delight. But the world is full of surprises. Some people are born with disabilities and when times passes by, causing problems, both physically and mentally. Take jaundice for instance. It will cause fever later affect the body and mind. If affect severely, it could damage the host’s neural system even intelligence. In this documentary, the interviewee is a main caregiver of a patient with multiple severe cerebral paralysis, Ms. Chen Siou-Yu (later known as Ms. Chen). Since the age of 17, Ms. Chen takes care of Chen Ming-Jhe’s (later known as Mr. Chen) living. Although it is a hard, long road, Ms. Chen never feels tired taking care of her brother. With her hard work and effort, it inspires her brother of his goal of survival and the meaning of life. Mr. Chen later find interest in reading. Afterwards with the suggestion of his physiotherapist, he encountered boccia. Boccia then became Mr. Chen’s favorite sport, he then become one of the main boccia national athlete of Taiwan. Many said that “Anything which could be solved with money is rather minor”. But when this “anything” involves a person, there is a slightest possibility that the negligence of the caregiver could cause other matters. How many caregivers could really be at one’s side at all times? On the one hand, taking care day and night; On the other, the financial burden. When the candle is burning on both ends, how do we torn on both sides? What will be the result? Spotlight on the disabled, but how about the caregiver who is always behind the curtains? Let’s find out and know more about the CAREGIVER through this documentary