Add to ORKGMuscular dystrophy causes progressive muscle disease that affects both children and their families. This poster describes a critical appraisal and synthesis of the literature describing factors affecting quality of life for children with MD. Identification of these factors can help professionals educate and support individuals and their families
Objective: To adapt the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHI...
Background: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies...
Quality of life studies in Duchenne Muscular Dystrophy are scarce. This study explores the relations...
Muscular dystrophy is a serious congenital disease that is currently incurable. There are many types...
Item does not contain fulltextThe progression of Duchenne muscular dystrophy is expected to negative...
Abstract Background Muscular dystrophies are chronic diseases manifesting with progressive muscle we...
Part of the Epidemiology Commons, and the Pediatrics Commons This Dissertation/Thesis is brought to ...
Background: Duchenne muscular dystrophy is associated with variable physical and psychosocial sequal...
AIM: This study investigated the relationship between quality of life (QoL) and health-related quali...
Abstract Duchenne Muscular Dystrophy (DMD) is a severe, life-limiting and incurable condition. Howev...
Participation and quality of life in children with Duchenne muscular dystrophy using the cohort of b...
Using Colaizzi’s Method of data analysis, which is a phenomenological approach, this paper explored ...
This study aims to assess the family functioning and health-related quality of life (HRQOL) in Chine...
Objective The relationship between functional dependence and quality of life (QO...
This cross-sectional study examined the influence that age/disease severity, pain, and/or family fun...
Objective: To adapt the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHI...
Background: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies...
Quality of life studies in Duchenne Muscular Dystrophy are scarce. This study explores the relations...
Muscular dystrophy is a serious congenital disease that is currently incurable. There are many types...
Item does not contain fulltextThe progression of Duchenne muscular dystrophy is expected to negative...
Abstract Background Muscular dystrophies are chronic diseases manifesting with progressive muscle we...
Part of the Epidemiology Commons, and the Pediatrics Commons This Dissertation/Thesis is brought to ...
Background: Duchenne muscular dystrophy is associated with variable physical and psychosocial sequal...
AIM: This study investigated the relationship between quality of life (QoL) and health-related quali...
Abstract Duchenne Muscular Dystrophy (DMD) is a severe, life-limiting and incurable condition. Howev...
Participation and quality of life in children with Duchenne muscular dystrophy using the cohort of b...
Using Colaizzi’s Method of data analysis, which is a phenomenological approach, this paper explored ...
This study aims to assess the family functioning and health-related quality of life (HRQOL) in Chine...
Objective The relationship between functional dependence and quality of life (QO...
This cross-sectional study examined the influence that age/disease severity, pain, and/or family fun...
Objective: To adapt the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHI...
Background: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies...
Quality of life studies in Duchenne Muscular Dystrophy are scarce. This study explores the relations...