Experiences of Family Caregivers’ Involvement in Treatment Related- Decision-Making in Triadic Health Encounters

Purpose: To explore the experiences of family caregiver in health decision-making for patients with chronic diseases. Study Design: Qualitative Descriptive Design. Subjects and Methods: A descriptive qualitative approach was used. A purposive sample of fifteen family caregiver for patients with chronic diseases were interviewed in Amman, Jordan; fifteen caregivers; males (n= 2), females (n= 13). Average of age = 40 years old. Data were generated through phone messages voice records over a period of two months (March & April 2020) in Amman, Jordan. Data were analyzed using a five–step technique proposed by Giorgi (1985). Results: The findings of the study revealed that three major themes related to family caregivers’ experiences in health decision-making for patients with chronic diseases: 1) The patient has the right to decide about his health, 2) Healthcare providers know better, and 3) Roles of family caregivers in the decision making process. Conclusion: The vital role of the family members in taking decisions for patients with chronic diseases is well-recognized by healthcare providers. Continuous systematic assessment of family members’ preferences and needs is crucial to provide the needed support for their patients in decision-making