Real-world experiences in autistic adult diagnostic services and post-diagnostic support and alignment with services guidelines: results from the ASDEU study
- Scattoni M. L.
- Micai M.
- Ciaramella A.
- Salvitti T.
- Fulceri F.
- Fatta L. M.
- Poustka L.
- Diehm R.
- Iskrov G.
- Stefanov R.
- Guillon Q.
- Roge B.
- Staines A.
- Sweeney M. R.
- Boilson A. M.
- Leosdottir T.
- Saemundsen E.
- Moilanen I.
- Ebeling H.
- Yliherva A.
- Gissler M.
- Parviainen T.
- Tani P.
- Kawa R.
- Vicente A.
- Rasga C.
- Budisteanu M.
- Dale I.
- Povey C.
- Flores N.
- Jenaro C.
- Monroy M. L.
- Primo P. G.
- Charman T.
- Cramer S.
- Warberg C. K.
- Canal-Bedia R.
- Posada M.
- Schendel D.
DOIAbstract
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guid...
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