The mothers perceptions about experience and learning of caring for a premature baby

Objetivo: analisar a percep????o materna sobre viv??ncia e aprendizado de cuidado de um beb?? prematuro. Metodologia: pesquisa qualitativa, com 21 m??es atendidas no ambulat??rio de neonatologia de um hospital geral do SUS, em Fortaleza-CE. Os dados foram coletados por meio de entrevistas e formul??rio, submetidos a t??cnica de an??lise de conte??do tem??tica e estat??stica descritiva. Resultados: a viv??ncia das m??es ?? marcada pelo trauma do parto prematuro. Ocorrem conflitos e sofrimento, decorrentes da inexist??ncia de uma rotina de suporte social perinatal para essas mulheres, aus??ncia da sistematiza????o do acolhimento e capacita????o das m??es no cuidado de seus filhos, quando internados na UTI neonatal, contrapondo a assist??ncia humanizada praticada na Enfermaria Canguru, al??m da dificuldade no acesso ao ambulat??rio especializado ap??s alta hospitalar. Conclus??o: necessidade de maior organiza????o da assist??ncia materno-infantil, com incorpora????o da integralidade do cuidado e humaniza????o da rela????o entre a fam??lia e os profissionais de sa??de.Objective: analyze maternal perception about experiencing and learning to care for premature baby. Methodology: qualitative research with 21 mothers at an ambulatory of neonatology of a General Hospital of Unified Health System-SUS in Fortaleza. The data was collected through interviews and forms, analyzed by Thematic Content Analysis Technique and descriptive statistics. Results: the experience of the mothers is marked by the trauma of premature birth. Conflicts and suffering resulting from the lack of a ???user embracement??? and perinatal social support for these women. Absence of systematization of reception and empowerment of mothers in their children???s care when admitted at the NICU opposing the humanized care provided at the Kangaroo ward as well as difficulty in accessing specialized clinic after discharge. Conclusion: the need for greater organization of mother and child assistance with incorporation of comprehensive and humanized care for family and health professionals