This paper considers the ethical issues raised by biobanking of material from children who are not mature enough to give ethically valid consent. The first part considers consent requirements for entry of such materials in the biobank, whereas the second part looks at the issues that arise when a competent child later wants to withdraw previously stored materials, and at the issues that arise when there is informational entanglement between information about a parent and information about a child
Biobanks have been recognized as a key research infrastructure and how to approach ethical questions...
Many discussions of health information privacy in relation to biobanks focus on the question of info...
More and more biological materials, such as blood or tissue samples and health data, are stored in l...
Whereas research on biological samples already exists for many years, developments in information an...
The use of stored tissue samples from children for genetic research raises specific ethical question...
The use of stored tissue samples from children for genetic research raises specific ethical question...
Although the issue of informed consent for human research biobanks has been analyzed in a number of ...
The use of tissue samples from children is vital to genetic research. Collections of such tissue, in...
Ethical, legal, and social issues related to the collection, storage, and use of biospecimens and da...
The inclusion of children's samples in biobanks brings forward specific ethical issues. Guidelines i...
Pediatric biobanking is considered important for generating biomedical knowledge and improving (pedi...
As pediatric biobank research grows, additional guidance will be needed about whether researchers sh...
Background: The tissue biobanking of specific biological residual materials, which constitutes a use...
Genetic relatedness poses significant challenges to traditional practices of medical ethics as conce...
The problem: We are investigating if biological material with human DNA sequence data is being colle...
Biobanks have been recognized as a key research infrastructure and how to approach ethical questions...
Many discussions of health information privacy in relation to biobanks focus on the question of info...
More and more biological materials, such as blood or tissue samples and health data, are stored in l...
Whereas research on biological samples already exists for many years, developments in information an...
The use of stored tissue samples from children for genetic research raises specific ethical question...
The use of stored tissue samples from children for genetic research raises specific ethical question...
Although the issue of informed consent for human research biobanks has been analyzed in a number of ...
The use of tissue samples from children is vital to genetic research. Collections of such tissue, in...
Ethical, legal, and social issues related to the collection, storage, and use of biospecimens and da...
The inclusion of children's samples in biobanks brings forward specific ethical issues. Guidelines i...
Pediatric biobanking is considered important for generating biomedical knowledge and improving (pedi...
As pediatric biobank research grows, additional guidance will be needed about whether researchers sh...
Background: The tissue biobanking of specific biological residual materials, which constitutes a use...
Genetic relatedness poses significant challenges to traditional practices of medical ethics as conce...
The problem: We are investigating if biological material with human DNA sequence data is being colle...
Biobanks have been recognized as a key research infrastructure and how to approach ethical questions...
Many discussions of health information privacy in relation to biobanks focus on the question of info...
More and more biological materials, such as blood or tissue samples and health data, are stored in l...