Parental Perspectives on Children with Autism Spectrum Disorder and Developmental Disability: Descriptive Phenomenology

The purpose of this study was to follow the formation of parental fields-of-view when coping with children who have autism spectrum disorders (ASD) and developmental disabilities (DD). The development of behavior, temperament and social communication within the context of family issues and needs served as the vantage point for this investigation. The researcher was also interested in finding indicative parental narratives that could provide recommendations for healthcare therapists. This was a qualitative, descriptive, phenomenological study. Audiotaped interviews were conducted with 18 parents raising children with ASD and DD. Colaizzi’s analytical approach was implemented in data analysis for identification of significant statements, meanings, and themes. Three thematic content areas emerged from the data. These included assessment of a child’s temperament, behavior, and communication within the context of parenting styles (My Child); family issues, stressors, and needs as impacting delivery of help to the child (Our Family), and parents’ interactions with therapists (Advice for Therapists). A broad range of challenges and family stressors were identified. In response, parents focused on preparing their children to function at optimal levels. Healthcare therapists are advised to support their persistent devotion to the improvement of practical expertise through the application of affirmative and substantiated practices. A health equity-based approach will aid in the development of shared goals. The commitment and sacrifice of these parents provides drive and reinforcement for the improvement of current health care practices and impetus in the search for better ways to help their children