Experiences of patients with epilepsy with their disease

Uvod: V diplomskem delu smo se osredotočali na paciente, obolele za epilepsijo, in sicer, kakšne izkušnje imajo v povezavi z omenjeno boleznijo, kako so sprejeli diagnozo in na kakšne prepreke so naleteli pri soočanju s samo boleznijo. Namen diplomskega dela je raziskati, kakšne izkušnje imajo pacienti, oboleli za epilepsijo, z njihovo boleznijo v vsakdanjem življenju ter kako se z le-to spoprijemajo. Metode: V zaključnem delu smo uporabili sistematični pristop dela z metodo pregleda, analize in sinteze znanstvene literature ter metodo kompilacije. Članke smo iskali v naslednjih podatkovnih bazah in sicer PubMed, CINAHL, Web of Science in Academic search. Za prikaz poteka sistematičnega pregleda literature je bil uporabljen diagram PRISMA. Kakovost posamičnih raziskav je bila ocenjena s pomočjo MATT orodja. Rezultati: Ugotovili smo, da so ključni dejavniki, ki vplivajo na življenja pacientov z epilepsijo naslednji: kakovost življenja, vpliv epilepsije na vsakdanje življenje, soočanje pacientov z epilepsijo in sprejemanje diagnoze. Razprava in sklep: Večina pacientov se še vedno negativno sooča s samo boleznijo, zato bi bilo smiselno, da bi v samo obravnavo bolj vključili medicinske sestre, saj bi z zdravstveno-vzgojnim delom bistveno izboljšale kakovost življenja pacientov.Introduction: in the diploma thesis we focused on the patients suffering from epilepsyabout what experiences have they associated to that disorder, how did they react upon receiving the diagnosis and what were the obstacles while coping with the disorder. The purpose of this final thesis was to research patient’s experiences about their disorder (epilepsy) in everyday life and how they are facing with it. Methods: In the final thesis a systematic work approach was performed with the method of review, analysis and synthesis of science literature and also the compilation method. We looked for articles in the following databases: PubMed, CINAHL, Web of Science and Academic search. Diagram PRISMA was used to display the systematic review of literature. The quality of the researches was evaluated using the MATT tools. Results: We found out that the key factors which influence on patient’s life, who are suffering from epilepsy, are: a quality of life, the influence of epilepsy on every day’s life, facing the patients with the epilepsy and dealing with the diagnosis. Discussion and conclusion: most of the patients confront negative with the disorder, therefore it is reasonable to include nurses into the treatment, because they could improve the quality of a patient’s life with the health education work