Health-related quality of life from adolescence to adulthood following extremely preterm birth
- Ni, Yanyan
- O'Reilly, Helen
- Johnson, Samantha
- Marlow, Neil
- Wolke, Dieter
DOIAbstract
To examine self-reported and parent-reported health-related quality of life (HRQL) in adults born extremely preterm compared with term-born controls and to evaluate trajectories of health status from adolescence to early adulthood. The EPICure study comprises all births <26 weeks of gestation in the United Kingdom (UK) and Ireland in 1995 and term-born controls recruited at age 6. 129 participants born extremely preterm and 65 controls were followed up at the 19-year assessment. HRQL was measured by the Health Utilities Index Mark 3 (HUI3) multi-attribute utility (MAU) scores. Only parent-reported HRQL was available at 11 years of age. Participants born extremely preterm without neurodevelopmental impairment had significantly lower MAU scor...
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