Patient focused registries can improve health, care, and science

Registries can evolve to become patient centred learning systems in which patients, clinicians, and scientists coproduce better health outcomes, improved services, and patient centred research They can be used to make “dashboards” integrating patient reported and clinical data to support decisions about care Registry data can be used to support practice based quality improvement, comparative benchmarking reports, and peer networks for clinicians and patients.This work is supported by funding from the Robert Wood Johnson Foundation (Grants: #71211 and 72313), the Cystic Fibrosis Foundation (Grant #OCONNO04Q10), and the Crohn’s and Colitis Foundation of America Quality of Care Initiative (Grant #3372). TSM was funded by the Multidisciplinary Clinical Research Center for Musculoskeletal Diseases at Dartmouth (P60 AR-062799, A. Tosteson, PI), sponsored by the National Institute for Arthritis and Musculoskeletal and Skin Diseases of the National Institutes of Health. EE was funded by The Swedish Research Council for Health, Work Life and Welfare (#2014-4238). MDW is supported by a Wellcome Trust Senior Investigator award (WT09789).This is the final version of the article. It first appeared from BMJ Group via https://doi.org/10.1136/bmj.i331