Making data Findable, Accessible, Interoperable and Reusable (FAIR) is a good approach when data needs to be shared. However, security and privacy are still critical aspects. In the FAIRification process, there is a need both for deidentification of data and for license attribution. The paper analyses some of the issues related to this process when the objective is sharing genomic information. The main results are the identification of the already existing standards that could be used for this purpose and how to combine them. Nevertheless, the area is quickly evolving and more specific standards could be specified.This work is partly supported by the Generalitat de Catalunya (2017 SGR 1749). Part of this work is also supported by the FAIR4H...
Both the European Union and the Council of Europe have a bearing on privacy in genomic databases and...
In order to study the relationship between genes and diseases, the increasing availability and shari...
In the big data era of precision medicine, personal genome sequences are becoming quickly accessed w...
To handle genomic information while supporting FAIR principles, we present GIPAMS, a modular archite...
An increasing amount of attention has been geared towards understanding the privacy risks that arise...
The necessity to develop collections of big health data concerning an increasing number of persons, ...
Today, whole human genome sequencing is a reality affordable for many individuals. Technology advanc...
Despite some notable progress in data sharing policies and practices, restrictions are still often p...
The study of human genomics is becoming a Big Data science, owing to recent biotechnological advance...
It is generally acknowledged that, for reproducibility and progress of human genomic research, data ...
The protection of identity of participants in medical research has traditionally been guaranteed by ...
Despite some notable progress in data sharing policies and practices, restrictions are still often p...
genetic information have become available for research and other purposes. An example of such databa...
Genetic data contain sensitive health and non-health-related information about the individuals and t...
Several studies show the difficulty experienced for the reuse of the ever-increasing amount of genom...
Both the European Union and the Council of Europe have a bearing on privacy in genomic databases and...
In order to study the relationship between genes and diseases, the increasing availability and shari...
In the big data era of precision medicine, personal genome sequences are becoming quickly accessed w...
To handle genomic information while supporting FAIR principles, we present GIPAMS, a modular archite...
An increasing amount of attention has been geared towards understanding the privacy risks that arise...
The necessity to develop collections of big health data concerning an increasing number of persons, ...
Today, whole human genome sequencing is a reality affordable for many individuals. Technology advanc...
Despite some notable progress in data sharing policies and practices, restrictions are still often p...
The study of human genomics is becoming a Big Data science, owing to recent biotechnological advance...
It is generally acknowledged that, for reproducibility and progress of human genomic research, data ...
The protection of identity of participants in medical research has traditionally been guaranteed by ...
Despite some notable progress in data sharing policies and practices, restrictions are still often p...
genetic information have become available for research and other purposes. An example of such databa...
Genetic data contain sensitive health and non-health-related information about the individuals and t...
Several studies show the difficulty experienced for the reuse of the ever-increasing amount of genom...
Both the European Union and the Council of Europe have a bearing on privacy in genomic databases and...
In order to study the relationship between genes and diseases, the increasing availability and shari...
In the big data era of precision medicine, personal genome sequences are becoming quickly accessed w...