People and place : co-creating an ecology of care at end of life

In this chapter we discuss findings from the Caring at End of Life research project which took place in New South Wales (NSW) and Australian Capital Territory (ACT), Australia, from 2009–2015. The research was qualitative and in-depth, and comprised interviews and focus groups with 212 lay carers, caring networks, community members and service providers. Our main aims were to understand what enables and supports caring networks when they care for someone who has chosen to die at home. We were also interested in how place of dying and death might have contributed to these networks. Importantly, our focus was on documenting and making visible what people found helpful and supportive in this process