IRB perspectives on the return of individual results from genomic research
- Dressler, Lynn G.
- Smolek, Sondra
- Ponsaran, Roselle
- Markey, Janell M.
- Starks, Helene
- Gerson, Nancy
- Lewis, Susan
- Press, Nancy
- Juengst, Eric
- Wiesner, Georgia L.
Publication date
January 2012
DOIAbstract
Return of individual research results from genomic studies is a hotly debated ethical issue in genomic research. However, the perspective of key stakeholders—Institutional Review Board (IRB) reviewers—has been missing from this dialogue. This study explores the positions and experiences of IRB members and staff regarding this issue
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