Haemophilia experiences, results and opportunities (HERO study) in Brazil : assessment of the psychosocial effects of haemophilia in patients and caregivers

The international Haemophilia Experiences, Results and Opportunities (HERO) study assessed the psychosocial aspects of life for people with haemophilia (PWH) and their caregivers in several countries. Brazil was not included in this initiative. An observational, multicentre, cross-sectional study was performed involving PWH (moderate-to-severe haemophilia) and their caregivers, from November 2014 to July 2015. The primary objective was to quantify the extent of the primary psychosocial factors affecting PWH in their everyday life. Descriptive statistics and comparisons between Brazilian and global respondents are presented. A total of 100 adult male PWH and 100 caregivers (responding on behalf of their oldest affected child aged