We used thematic analysis to investigate factors affecting decision making about gastrostomy and noninvasive ventilation (NIV) by people with Amyotrophic Lateral Sclerosis (ALS) from the viewpoint of the health care professionals (HCPs) supporting them. We conducted 20 in-depth interviews with 19 HCPs nominated by people with ALS who had made a decision to accept or decline NIV or gastrostomy. We found the main themes influencing decision making were patient-centric, caregiver-related or related to HCPs' own beliefs, perspectives, and actions. HCPs felt patients should be, and were, in control of decision making, although caregivers and HCPs played a role. The patient's evaluation of quality of life, the desirability of prolonging life, and...
Background: Patients with amyotrophic lateral sclerosis (ALS) face numerous decisions for symptom ma...
Anne Hogden,1 David Greenfield,1 Peter Nugus,1 Matthew C Kiernan21Centre for Clinical Governance Res...
Overarching themes on the experiences of people with ALS, caregivers, and healthcare professionals w...
Our objective was to identify factors associated with acceptance of non-invasive ventilation (NIV) a...
Amyotrophic lateral sclerosis (ALS) is a progressive neurological disease that leads to respiratory ...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
Background: Patients with amyotrophic lateral sclerosis (ALS) are required to make decisions concern...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
Anne Hogden,1 David Greenfield,1 Peter Nugus,1 Matthew C Kiernan21Centre for Clinical Governance Res...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
The unfavourable outcome of amyotrophic lateral sclerosis (ALS) confronts patients with challenging ...
Abstract Background People with motor neuron disease (pwMND) are routinely offered gastrostomy feedi...
Abstract Objective To investigate intercultural neurologists' perception of well‐being in patients w...
Background: Patients with amyotrophic lateral sclerosis (ALS) face numerous decisions for symptom ma...
Anne Hogden,1 David Greenfield,1 Peter Nugus,1 Matthew C Kiernan21Centre for Clinical Governance Res...
Overarching themes on the experiences of people with ALS, caregivers, and healthcare professionals w...
Our objective was to identify factors associated with acceptance of non-invasive ventilation (NIV) a...
Amyotrophic lateral sclerosis (ALS) is a progressive neurological disease that leads to respiratory ...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
Background: Patients with amyotrophic lateral sclerosis (ALS) are required to make decisions concern...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
Anne Hogden,1 David Greenfield,1 Peter Nugus,1 Matthew C Kiernan21Centre for Clinical Governance Res...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional supp...
The unfavourable outcome of amyotrophic lateral sclerosis (ALS) confronts patients with challenging ...
Abstract Background People with motor neuron disease (pwMND) are routinely offered gastrostomy feedi...
Abstract Objective To investigate intercultural neurologists' perception of well‐being in patients w...
Background: Patients with amyotrophic lateral sclerosis (ALS) face numerous decisions for symptom ma...
Anne Hogden,1 David Greenfield,1 Peter Nugus,1 Matthew C Kiernan21Centre for Clinical Governance Res...
Overarching themes on the experiences of people with ALS, caregivers, and healthcare professionals w...