The Lived Experiences of Individuals with Acquired Deafblindness: Challenges and the Future

The lived experiences of seven individuals who are deaf blind (DB) were explored through the use of semi-structured face-to-face interviews. Two of the emerging themes from this phenomenological analysis were: (1) the daily challenges faced by the participants (e.g., difficulties with communication; compromised activities of daily living; lack of independence; and (2) their lack of preparedness for the future resulting from the uncertainties associated with their degenerative diseases. The findings from this study clearly articulate the importance of intervenor services from the perspective of these individuals