Aim. This paper reports a study of how family members caring for people living with motor neurone disease managed the deteriorating body, their own bodywork and the associated emotional labour. Background. People living with the neurodegenerative condition of motor neurone disease face the prospect of dying in 3–5 years from progressive loss of voluntary muscle mass and function, culminating in respiratory failure. Theories concerning the body in illness have been used to illustrate patient perspectives; however, family caregivers’ experiences of the body have been neglected. Method. An ethnographic case study was undertaken with 18 primary family caregivers and six peripheral caregivers. Primary caregivers participated over 10 months i...
Background: People with motor neuron disease (MND) face barriers when accessing palliative care. The...
Objective We aimed to get an in-depth understanding of the emotions experienced by people with motor...
Background: Increasingly, people with neurodegenerative illness are cared for at home until close to...
Aim. This paper reports a study of how family members caring for people living with motor neurone di...
Background Motor neurone disease (MND) is a progressive neurological disease causing...
Aim and objectives: \ud This paper aims to add to nurses' knowledge concerning the challenges, losse...
Background: Motor Neurone Disease (MND) is a neurodegenerative disease with a sudden onset, a rapid ...
People living with motor neurone disease (MND) experience progressive loss of muscle mass and functi...
Abstract Background: Motor Neurone Disease (MND) is a neurodegenerative disease with a sudden onset,...
Background: Motor Neurone Disease (MND) is a terminal neurological disease. Little attention has bee...
Background: There are few illnesses as disruptive as motor neurone disease, a fatal neurodegenerativ...
Most research on partners' experiences of living with a person with MND is questionnaire-based with ...
Objective: To investigate social aspects of caregiving for people living with motor neurone diseas...
BACKGROUND: People with motor neuron disease (MND) face barriers when accessing palliative care. T...
While the experiences of family members supporting a person with a terminal illness are well documen...
Background: People with motor neuron disease (MND) face barriers when accessing palliative care. The...
Objective We aimed to get an in-depth understanding of the emotions experienced by people with motor...
Background: Increasingly, people with neurodegenerative illness are cared for at home until close to...
Aim. This paper reports a study of how family members caring for people living with motor neurone di...
Background Motor neurone disease (MND) is a progressive neurological disease causing...
Aim and objectives: \ud This paper aims to add to nurses' knowledge concerning the challenges, losse...
Background: Motor Neurone Disease (MND) is a neurodegenerative disease with a sudden onset, a rapid ...
People living with motor neurone disease (MND) experience progressive loss of muscle mass and functi...
Abstract Background: Motor Neurone Disease (MND) is a neurodegenerative disease with a sudden onset,...
Background: Motor Neurone Disease (MND) is a terminal neurological disease. Little attention has bee...
Background: There are few illnesses as disruptive as motor neurone disease, a fatal neurodegenerativ...
Most research on partners' experiences of living with a person with MND is questionnaire-based with ...
Objective: To investigate social aspects of caregiving for people living with motor neurone diseas...
BACKGROUND: People with motor neuron disease (MND) face barriers when accessing palliative care. T...
While the experiences of family members supporting a person with a terminal illness are well documen...
Background: People with motor neuron disease (MND) face barriers when accessing palliative care. The...
Objective We aimed to get an in-depth understanding of the emotions experienced by people with motor...
Background: Increasingly, people with neurodegenerative illness are cared for at home until close to...