Experiences of integrated care: reflections on tensions of size, scale and perspective between ethnography and evaluation

An in-depth case study of integrated health and social care provides the empirical basis for this exploration of tensions between ethnography and evaluation. The case study, developed from a two year period of fieldwork, is based on ethnographic data of individuals’ experiences of living with multiple long-term conditions, their experiences of integrated care, and integrated care commissioning practices. Narrative and phenomenological analysis show how temporal aspects of ethnographic fieldwork contribute to producing knowledge of patients’ experiences. However, tensions emerge when attempting to bring learning from these experiences into discussions about evaluations of services. Data generated from fieldwork are seen as both too ‘big’, in terms of quantity of details, and too ‘small’, in terms of generalisability. Scale is also of concern, as tensions between ethnography and evaluation play out in questions of relevance. Ethnography foregrounds embodied, day-to-day lived experience, bringing the minutiae of daily life into sharp focus whereas evaluators need a wider angle to foreground larger objects of interest; organisations, budgets, services. A further source of tension between ethnography and evaluation emerges in defining interventions as distinct from context, when the conceptual boundary required to distinguish the shape of the intervention within a social world blurs and dissolves under the close gaze of an immersed ethnographer, problematizing attempts to inform causation. Concerns are raised that without greater dialogue about the nature of knowledge produced by patients’ experiences, these experiences are at risk of being marginalised and de-centred