Living with Uncertainty: The Experiences of Parents and Children When a Parent is Living with and Dying from, Advanced cancer

Living with Uncertainty: The Experiences of Parents and Children When a Parent is Living with and Dying from, Advanced cancer Gabrielle Erica Pitt Doctor of Philosophy, 2017 Factor-Inwentash Faculty of Social Work University of Toronto Abstract Advanced cancer and its progression and treatment deeply affect members of a family, especially the children. The limited research contends that the complexities of advanced cancer and the anticipated loss of a parent result in greater psychosocial vulnerability for children, compromising their well-being (Beale et al., 2004; Bugge et al., 2008; Christ, 2000). Conducted at the Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, the purpose of this interpretive research was to investigate the experiences of parents and children six to eighteen years coping with a parent living with, and dying from, advanced cancer. This study focused on the meaning children and parents ascribe to this time of uncertainty, in addition to aspects such as emotional security, and the role of parents in understanding, and ameliorating, potential effects to children. Seven families participated in the study (seven parents with advanced cancer, four children, and four well parents). A review of the existent literature was presented thematically, and demonstrated critical gaps and meagreness of the research. The theoretical framework encompassed social constructivism and sociocultural theory, in addition to the relational theories of attachment and intersubjectivity. Aspects of neurobiology underpinned the framework. Each facet of the framework was situated within the context of children and parents coping with advanced cancer and anticipatory loss. A theoretical model depicts this framework. Hermeneutic interpretive phenomenology was the methodology incorporated in this study. The primary method of data collection was semi-structured interviews with children and parents separately. Interpretative Phenomenological Analysis (Smith et al., 2009) guided the data analysis and interpretation. Results of the study are presented as a discussion of the themes, illustrated in an accompanying map. A review of the findings in relation to the research questions, the empirical literature, and theoretical framework reveals potential contributions of this research. This study concludes with implications for scholarly knowledge, social policy, social work education and practice, and recommendations for future research. Results of this research will advance the understanding of the experiences of parents and children, inform social work education and practice, and facilitate the development of interventions promoting positive outcomes for children and families.Ph.D