Working with cancer: a pilot study of work participation amongst cancer survivors in Western Sydney.

Background: Around forty percent of cancer diagnoses occur in working-age adults. Improvements in screening and treatment means that most are expected to live years beyond their diagnosis. However, many experience persistent impairments from treatment such as fatigue, cognitive difficulties and emotional distress. Work is a key occupation for this population yet little is understood about working with cancer in the Australian context. Aim: This pilot study aims to investigate work participation amongst cancer survivors in Western Sydney and identify factors associated with returning to work. Methods: A cross-sectional online survey was developed to measure work participation and factors associated with work. Study participants aged 20-65 years, employed at diagnosis, with basic English and computer literacy were recruited from a cancer clinic in Western Sydney over a three-month period. Results: Nineteen survey responses were received and analysed. Participants had returned or remained at work (n=9, 47.4%), unsuccessfully attempted to return to work (RTW) (n=2, 10.5%), or were on leave from work (n=8, 42.1%). Of those on leave most did not plan to RTW (n=6, 31.6%). Fatigue (n=15, 78.9%), difficulty concentrating (n=8, 42.1%), memory issues (n=8, 42.1%), stomach upset (n=7, 36.8%), sleep disturbance, (n=7, 36.8%), and psychological distress (n=7, 36.8%) impacted perceived work ability. Physically demanding work (n=8, 42.1%), length of workday (n=6, 31.6%), productivity demands (n=5, 26.3%) and commuting (n=4, 21.1%) were challenging to manage after cancer. Approximately a quarter of participants reported discussing RTW with people other than their employer (n=5, 26.3%). A supportive workplace was a facilitator for work, whereas a non-supportive workplace was considered a major barrier. Overall participants reported positive attitudes towards work. Conclusion: Cancer survivors in Western Sydney may face challenges engaging in work after treatment. Work participation may be influenced by side effects of treatment, difficulty performing work demands and the work environment