ObjectivesSeizure burden is typically measured by seizure frequency yet it entails more than seizure counts, especially for people with severe epilepsies and their caregivers. We aimed to characterize the multiâ faceted nature of seizure burden in young people and their parents who are living with severe earlyâ life epilepsies.MethodsA oneâ day workshop and a series of teleconferences were held with parents of children with severe, refractory epilepsy of earlyâ life origin and providers for children with epilepsy. The workshop sessions were structured as focus groups and aimed to identify components of seizure burden and their impact from the perspective of parents and providers. Data were gathered, organized, and refined during the wor...
AbstractPurposeThe assessment of the quality of life (QoL) is relevant for a comprehensive treatment...
Dehn L, Korn-Merker E, Pfafflin M, Ravens-Sieberer U, May T. The Impact on Family Scale: Psychometri...
Objective: To determine the prevalence of parent‐reported sleep problems in young children with epi...
Purpose: The assessment of the quality of life (QoL) is relevant for a comprehensive treatment of pa...
Introduction: Caring for a child with epilepsy has a significant impact on parental quality of life....
AbstractParents of children with severe and intractable epilepsy face profound caregiving challenges...
Because of the nature of epilepsy, and the unpredictability of seizure recurrence, epilepsy requires...
Objectives: To characterize the burden of seizure clusters (SC) on patients and caregivers, a large ...
AbstractStatement of the problem: There is increasing interest in reducing burden of illness in fami...
BACKGROUND: Epilepsy is one of the most common neurological conditions worldwide. As a chronic condi...
Aim. Caregiver burden (CB) in epilepsy constitutes an understudied area. Here we attempt to identify...
The aim of the study was to gain a comprehensive understanding of the experiences and needs of paren...
Copyright © 2014 Ioannis Karakis et al.This is an open access article distributed under the Creative...
Aim. Caregiver burden (CB) in epilepsy constitutes an understudied area. Here we attempt to identify...
Background: Although the long-term course of childhood epilepsy is favorable in terms of seizure con...
AbstractPurposeThe assessment of the quality of life (QoL) is relevant for a comprehensive treatment...
Dehn L, Korn-Merker E, Pfafflin M, Ravens-Sieberer U, May T. The Impact on Family Scale: Psychometri...
Objective: To determine the prevalence of parent‐reported sleep problems in young children with epi...
Purpose: The assessment of the quality of life (QoL) is relevant for a comprehensive treatment of pa...
Introduction: Caring for a child with epilepsy has a significant impact on parental quality of life....
AbstractParents of children with severe and intractable epilepsy face profound caregiving challenges...
Because of the nature of epilepsy, and the unpredictability of seizure recurrence, epilepsy requires...
Objectives: To characterize the burden of seizure clusters (SC) on patients and caregivers, a large ...
AbstractStatement of the problem: There is increasing interest in reducing burden of illness in fami...
BACKGROUND: Epilepsy is one of the most common neurological conditions worldwide. As a chronic condi...
Aim. Caregiver burden (CB) in epilepsy constitutes an understudied area. Here we attempt to identify...
The aim of the study was to gain a comprehensive understanding of the experiences and needs of paren...
Copyright © 2014 Ioannis Karakis et al.This is an open access article distributed under the Creative...
Aim. Caregiver burden (CB) in epilepsy constitutes an understudied area. Here we attempt to identify...
Background: Although the long-term course of childhood epilepsy is favorable in terms of seizure con...
AbstractPurposeThe assessment of the quality of life (QoL) is relevant for a comprehensive treatment...
Dehn L, Korn-Merker E, Pfafflin M, Ravens-Sieberer U, May T. The Impact on Family Scale: Psychometri...
Objective: To determine the prevalence of parent‐reported sleep problems in young children with epi...