MyBackPain: development and evaluation of an internet-based consumer resource for people with low back pain (Preprint)

People increasingly use the internet to obtain information about health complaints, including low back pain (LBP). LBP is the leading cause of disability internationally and outcomes are worsening. There is an urgent need for resources that aid improvement of outcomes. There have been calls to engage consumers in development of resources, but this has rarely been implemented. MyBackPain is a website that was developed with extensive involvement of consumers to ensure that the resource meets their needs for content and presentation. This paper describes the multistep process undertaken to develop the MyBackPain website and the extensive evaluation of its impact. Development of MyBackPain involved 10 steps, many of which have been published in the academic literature. These steps included; consultation regarding consumer needs, evaluation of existing Internet resources, identification of key messages to be reinforced, identification of frequently asked questions, consensus for content, content development (including development of algorithms to guide tailoring of the user experience), development of consumer-focused evidence-based treatment summaries, development of descriptions of health care providers, and testing. Evaluation has included qualitive examination of people’s interactions with the website and its effects in their daily lives, and a randomised controlled clinical trial of impact of use of the site on people’s LBP-related health literacy, clinical outcomes and treatment choices. It is hoped that the website can aid reduction of the massive burden of LBP and provide a template for development of resources for other conditions