Haemophilia A: health and economic burden of a rare disease in Portugal
- Café, Andreia
- Carvalho, Manuela
- Crato, Miguel
- Faria, Miguel
- Kjollerstrom, Paula
- Oliveira, Cristina
- Pinto, Patrícia Jesus Ribeiro
- Salvado, Ramón
- Dos Santos, Alexandra Aires
- Silva, Catarina
Publication date
September 2019
DOI Publisher
Springer Science and Business Media LLC Journal
Orphanet Journal of Rare Diseases Language
EnglishAbstract
Haemophilia A is a hereditary bleeding disorder, which has been considered rare and chronic. The burden of this disease in Portugal remains unknown. The aim of this study was to estimate the annualized cost and health burden of haemophilia A in Portugal.Financial support for the study was provided by Roche. Eurotrials, Scientific Consultants (Contract Research Organization) was appointed by Roche to conduct the independent expert panel and perform the economic analysis
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