Exploration of factors that influence advance care planning for primary care patients

The purpose of this exploratory descriptive research study is to explore the individual factors that influence health care decisions in a small sample of primary care patients who have received advance care planning education through the State Innovation Model Grant in Rhode Island. Both quantitative and qualitative data was gathered from a voluntary 10 question participant survey. This survey research aimed to answer the following research questions: What are the individual, environmental and behavioral factors that influence healthcare decisions at end-of-life? How do individuals, in their own words, describe the thought process used for making decisions about advance care planning? A 38% response rate was achieved. Results revealed that education about end of life care and family were the most consistently reported elements which helped make choices for preferred care at end of life. Two major themes emerged, control over self and family, and sharing of experiences that impact decision making for care at end of life. Awareness of elements that influence preferences for care provide valuable insight into the thought processes that frame healthcare choices for end of life care and identify barriers and facilitators that influence end of life planning. Knowledge of this information can guide program development, policy and procedures around advance care planning. Keywords: advance care planning, decision making, end of life care, health behavior, communication, primary car