Patients are increasingly being encouraged and supported to access and control their own medical and genomic data. We argue that well-established and transparent raw genomic data retention and returning policies are imperative to enable patients to practice their rights to access and control raw data
Despite some notable progress in data sharing policies and practices, restrictions are still often p...
Advances in genomics often lead healthcare professionals (HCPs) to learn new information, e.g., abou...
Advances in genomics often lead healthcare professionals (HCPs) to learn new information, e.g., abou...
Patients are increasingly being encouraged and supported to access and control their own medical and...
Patients are increasingly being encouraged and supported to access and control their own medical and...
BACKGROUND: There is a growing support for the stance that patients and research participants should...
Background: There is a growing support for the stance that patients and research participants should...
Background There is a growing support for the stance that patients and research participants should ...
The importance of genomic information for care of individual patients and for the development of kno...
Abstract Background Platforms for sharing genomic and phenotype data have been developed to promote ...
Despite some notable progress in data sharing policies and practices, restrictions are still often p...
AbstractThe importance of genomic information for care of individual patients and for the developmen...
Whole genome/exome sequencing (WGS/WES) has become widely adopted in research and, more recently, in...
The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model-"registered ...
The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model-"registered ...
Despite some notable progress in data sharing policies and practices, restrictions are still often p...
Advances in genomics often lead healthcare professionals (HCPs) to learn new information, e.g., abou...
Advances in genomics often lead healthcare professionals (HCPs) to learn new information, e.g., abou...
Patients are increasingly being encouraged and supported to access and control their own medical and...
Patients are increasingly being encouraged and supported to access and control their own medical and...
BACKGROUND: There is a growing support for the stance that patients and research participants should...
Background: There is a growing support for the stance that patients and research participants should...
Background There is a growing support for the stance that patients and research participants should ...
The importance of genomic information for care of individual patients and for the development of kno...
Abstract Background Platforms for sharing genomic and phenotype data have been developed to promote ...
Despite some notable progress in data sharing policies and practices, restrictions are still often p...
AbstractThe importance of genomic information for care of individual patients and for the developmen...
Whole genome/exome sequencing (WGS/WES) has become widely adopted in research and, more recently, in...
The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model-"registered ...
The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model-"registered ...
Despite some notable progress in data sharing policies and practices, restrictions are still often p...
Advances in genomics often lead healthcare professionals (HCPs) to learn new information, e.g., abou...
Advances in genomics often lead healthcare professionals (HCPs) to learn new information, e.g., abou...
DOI
Add to ORKG