The PROCLIPI international registry of early-stage mycosis fungoides identifies substantial diagnostic delay in most patients
- Scarisbrick, J J
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- Hodak, E
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- Szepesi, A
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- Dummer, R
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- Pham-Ledard, A
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- Geissinger, E
- Wehkamp, U
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- Cowan, R
- Parry, E
- Harris, J
- Wachsmuth, R
- Turner, D
- Bates, A
- Healy, E
- Trautinger, F
- Latzka, J
- Yoo, J
- Vydianath, B
- Amel-Kashipaz, R
- Marinos, L
- Oikonomidi, A
- Stratigos, A
- Vignon-Pennamen, M-D
- Battistella, M
- Climent, F
- Gonzalez-Barca, E
- Georgiou, E
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DOIAbstract
Survival in mycosis fungoides (MF) is varied and may be poor. The PROCLIPI (PROspective Cutaneous Lymphoma International Prognostic Index) study is a web-based data collection system for early-stage MF with legal data-sharing agreements permitting international collaboration in a rare cancer with complex pathology. Clinicopathological data must be 100% complete and in-built intelligence in the database system ensures accurate staging
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