European Cardiomyopathy Pilot Registry: EURObservational Research Programme of the European Society of Cardiology

The Netherlands Arrhythmogenic Cardiomyopathy Registry:design and status update

Bosman, L. P.
Verstraelen, T. E.
van Lint, F. H. M.
Cox, M. G. P. J.
Groeneweg, J. A.
Mast, T. P.
van der Zwaag, P. A.
Volders, P. G. A.
Evertz, R.
Wong, L.
de Groot, N. M. S.
Zeppenfeld, K.
van der Heijden, J. F.
van den Berg, M. P.
Wilde, A. A. M.
Asselbergs, F. W.
Hauer, R. N. W.
te Riele, A. S. J. M.
van Tintelen, J. P.
Baas, A. E.
Barge-Schaapveld, D. Q. C. M.
Boekholdt, S. M.
Cramer, M. J. M.
Dooijes, D.
Jongbloed, J. D. H.
Loh, P.
Planken, R. N.
Prakken, N. H. J.
van der Smagt, J. J.
van der Wal, A. C.
Teske, A. J.
van Veen, T. A. B.
Velthuis, B. K.
Vink, A.
Yap, S. C.

October 2019

Background Clinical research on arrhythmogenic cardiomyopathy (ACM) is typically limited by small pa...

Epidemiology of cardiomyopathy – A clinical and genetic study of restrictive cardiomyopathy: The EPOCH-R study

Kapoor, Mitali
Das, Soumi
Biswas, Amitabh
Seth, Sandeep
Bhargava, Balram
Rao, Vadlamudi Raghavendra

January 2017

Introduction: Restrictive cardiomyopathy (RCM) is characterized by diastolic dysfunction, biatrial e...

Epidemiology of cardiomyopathy – A Clinical and Genetic Study of Restrictive Cardiomyopathy: The EPOCH-R Study

Mitali Kapoor
Soumi Das
Amitabh Biswas
Sandeep Seth
Balram Bhargava
Vadlamudi Raghavendra Rao

January 2017

Introduction: Restrictive cardiomyopathy (RCM) is characterized by diastolic dysfunction, biatrial e...

European Cardiomyopathy Pilot Registry: EURObservational Research Programme of the European Society of Cardiology

Perry Elliott
Philippe Charron
Juan Ramon Gimeno Blanes
Luigi Tavazzi
Michal Tendera
Marème Konté
Cécile Laroche
the EORP Cardiomyopathy Registry Pilot Investigators: [Aris Anastasakis
Eloisa Arbustini
Folkert W. Asselbergs
Anna Axelsson
Dulce Brito
Alida L. P. Caforio
Gerald Carr White
Agata Czekaj
Thibaud Damy
Emmanuela Devoto
Valentina Favalli
Iain Findlay
Pablo Garcia Pavia
Albert Hagège
Tiina Heliö
Sabino Iliceto
Richard Isnard
Joeri A. Jansweijer
Giuseppe Limongelli
Ales Linhart
David López Cuenca
Nicolas Mansencal
Pascal McKeown
Jens Mogensen
Saidi A. Mohiddin
Lorenzo Monserrat
Iacopo Olivotto
A. G. Rigopoulos
Stefania Rosmini
Barbara Pfeiffer
Eleanor Wicks]
MAGGIONI, ALDO PIETRO
RAPEZZI, CLAUDIO

January 2016

Cardiomyopathies are a heterogeneous group of disorders associated with premature death due to ventr...

European cardiomyopathy pilot registry: EURObservational research programme of the European society of cardiology

January 2016

Aims: Cardiomyopathies are a heterogeneous group of disorders associated with premature death due to...

European Cardiomyopathy Pilot Registry : EURObservational Research Programme of the European Society of Cardiology

Elliott, Perry
Charron, Philippe
Blanes, Juan Ramon Gimeno
Tavazzi, Luigi
Tendera, Michal
Konté, Marème
Laroche, Cécile
Maggioni, Aldo P
Asselbergs, FW

January 2016

AIMS: Cardiomyopathies are a heterogeneous group of disorders associated with premature death due to...

The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies.

Charron, Philippe
Elliott, Perry M
Gimeno, Juan R
Caforio, Alida L P
Kaski, Juan Pablo
Tavazzi, Luigi
Tendera, Michal
Maupain, Carole
Laroche, Cécile
Rubis, Pawel
Jurcut, Ruxandra
Calò, Leonardo
Heliö, Tiina M
Sinagra, Gianfranco
Zdravkovic, Marija
Kavoliuniene, Aušra
Felix, Stephan B
Grzybowski, Jacek
Losi, Maria-Angela
Asselbergs, Folkert W
García-Pinilla, José Manuel
Salazar-Mendiguchia, Joel
Mizia-Stec, Katarzyna
Maggioni, Aldo P
EORP Cardiomyopathy Registry Investigators

January 2018

The Cardiomyopathy Registry of the EURObservational Research Programme is a prospective, observation...

The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: Baseline data and contemporary management of adult patients with cardiomyopathies

Charron, P
Elliott, PM
Gimeno, JR
Caforio, ALP
Kaski, JP
Tavazzi, L
Tendera, M
Maupain, C
Laroche, C
Rubis, P
Jurcut, R
Cal\uf2, L
Heli\uf6, TM
Sinagra, G
Zdravkovic, M
Kavoliuniene, A
Felix, SB
Grzybowski, J
Losi, MA
Asselbergs, FW
Garc\ueda-Pinilla, JM
Salazar-Mendiguchia, J
Mizia-Stec, K
Maggioni, AP

January 2018

AIMS: The Cardiomyopathy Registry of the EURObservational Research Programme is a prospective, obser...

The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporarymanagement of adult patients with cardiomyopathies

Charron, Philippe
Elliott, Perry M.
Gimeno, Juan R.
Caforio, Alida L. P.
Kaski, Juan Pablo
Tavazzi, Luigi
Tendera, Michal
Maupain, Carole
Laroche, Cécile
Rubis, Pawel
Jurcut, Ruxandra
Calò, Leonardo
Heliö, Tiina M.
Sinagra, Gianfranco
Zdravkovic, Marija
Kavoliuniene, Aušra
Felix, Stephan B.
Grzybowski, Jacek
Losi, Maria-Angela
Asselbergs, Folkert W.
García-Pinilla, José Manuel
Salazar-Mendiguchia, Joel
Mizia-Stec, Katarzyna
Maggioni, Aldo P.
Anastasakis, Aris
Biagini, Elena
Bilinska, Zofia
Castro, Francisco Jose
Celutkiene, Jelena
Chakova, Natalija
Chmielewski, Przemyslaw
Drago, Fabrizio
Frigy, Attila
Frustaci, Andrea
Garcia-Pavia, Pablo
Hinic, Sasa
Kindermann, Ingrid
Limongelli, Giuseppe
Medrano, Constancio
Monserrat, Lorenzo
Olusegun-Joseph, Akinsanya
Ripoll-Vera, Tomas
Lopes, Luis Rocha
Saad, Aly
Sala, Simone
Seferovic, Petar M.
Sepp, Robert
Urbano-Moral, Jose Angel
Villacorta, Eduardo
Wybraniec, Maciej
Yotti, Raquel
Zachara, Elisabetta
Zorio, Esther

January 2018

Aims The Cardiomyopathy Registry of the EURObservational Research Programme is a prospective, observ...

Improving diagnosis and risk stratification across the ejection fraction spectrum: the Maastricht Cardiomyopathy registry

Henkens, M.T.H.M.
Weerts, J.
Verdonschot, J.A.J.
Raafs, A.G.
Stroeks, S.
Sikking, M.A.
Amin, H.
Mourmans, S.G.J.
Geraeds, C.B.G.
Sanders-van Wijk, S.
Aizpurua, A.B.
Uszko-Lencer, N.H.M.K.
Krapels, I.P.C.
Wolffs, P.F.G.
Brunner, H.G.
Leeuwen, R.E.W.
Verhesen, W.
Schalla, S.M.
van Stipdonk, A.W.M.
Knackstedt, C.
Li, X.F.
Hamid, M.A.A.
van Paassen, P.
Hazebroek, M.R.
Vernooy, K.
Brunner-La Rocca, H.P.
van Empel, V.P.M.
Heymans, S.R.B.

April 2022

Aims Heart failure (HF) represents a clinical syndrome resulting from different aetiologies and degr...

Prospective follow-up in various subtypes of cardiomyopathies: Insights from the ESC EORP Cardiomyopathy Registry

Gimeno, J R
Elliott, P M
Tavazzi, L
Tendera, M
Kaski, J P
Laroche, C
Barriales-Villa, R
Seferovic, P
Biagini, E
Arbustini, E
Rocha-Lopes, L
Linhart, A
Mogensen, J
Hagege, A
Espinosa, M A
Saad, A
Maggioni, A P
Caforio, A L P
Charron, Ph

January 2021

The ESC EORP Cardiomyopathy Registry is a prospective multinational registry of consecutive patients...

ESC EORP Cardiomyopathy Registry: real‐life practice of genetic counselling and testing in adult cardiomyopathy patients

Heliö, Tiina
Elliott, Perry
Koskenvuo, Juha,
Gimeno, Juan,
Tavazzi, Luigi
Tendera, Michal
Kaski, Juan Pablo
Mansencal, Nicolas
Bilińska, Zofia
Carr-White, Gerry
Damy, Thibaud
Frustaci, Andrea
Kindermann, Ingrid
Ripoll-Vera, Tomas
Čelutkienė, Jelena
Axelsson, Anna
Lorenzini, Massimiliano
Saad, Aly
Maggioni, Aldo,
Laroche, Cécile
Caforio, Alida L.P.
Charron, Philippe

August 2020

International audienceAims: Cardiomyopathies comprise a heterogeneous group of diseases, often of ge...

Rajaie Cardiomyopathy and Myocarditis Registry: protocol for an observational study

Majid Maleki
Freidoun Noohi
Parham Sadeghipour
Mohammad Mehdi Peighambari
Ahmad Amin
Niloufar Samiee
Majid Haghjoo
Nahid Rezaeian
Saeedeh Mazloomzadeh
Elaheh Baghizadeh
Farnaz Rafiee
Behshid Ghadrdoost

July 2021

Background: Cardiomyopathies are characterized by structural and functional abnormalities of myocard...

ESC EORP Cardiomyopathy Registry: real-life practice of genetic counselling and testing in adult cardiomyopathy patients

Helio T.
Elliott P.
Koskenvuo J. W.
Gimeno J. R.
Tavazzi L.
Tendera M.
Kaski J. P.
Mansencal N.
Bilinska Z.
Carr-White G.
Damy T.
Frustaci A.
Kindermann I.
Ripoll-Vera T.
Celutkiene J.
Axelsson A.
Lorenzini M.
Saad A.
Maggioni A. P.
Laroche C.
Caforio A. L. P.
Charron P.

January 2020

Aims: Cardiomyopathies comprise a heterogeneous group of diseases, often of genetic origin. We asses...

The Netherlands Arrhythmogenic Cardiomyopathy Registry:design and status update

Bosman, L. P.
Verstraelen, T. E.
van Lint, F. H. M.
Cox, M. G. P. J.
Groeneweg, J. A.
Mast, T. P.
van der Zwaag, P. A.
Volders, P. G. A.
Evertz, R.
Wong, L.
de Groot, N. M. S.
Zeppenfeld, K.
van der Heijden, J. F.
van den Berg, M. P.
Wilde, A. A. M.
Asselbergs, F. W.
Hauer, R. N. W.
te Riele, A. S. J. M.
van Tintelen, J. P.
Baas, A. E.
Barge-Schaapveld, D. Q. C. M.
Boekholdt, S. M.
Cramer, M. J. M.
Dooijes, D.
Jongbloed, J. D. H.
Loh, P.
Planken, R. N.
Prakken, N. H. J.
van der Smagt, J. J.
van der Wal, A. C.
Teske, A. J.
van Veen, T. A. B.
Velthuis, B. K.
Vink, A.
Yap, S. C.

October 2019

Background Clinical research on arrhythmogenic cardiomyopathy (ACM) is typically limited by small pa...

Epidemiology of cardiomyopathy – A clinical and genetic study of restrictive cardiomyopathy: The EPOCH-R study

Kapoor, Mitali
Das, Soumi
Biswas, Amitabh
Seth, Sandeep
Bhargava, Balram
Rao, Vadlamudi Raghavendra

January 2017

Introduction: Restrictive cardiomyopathy (RCM) is characterized by diastolic dysfunction, biatrial e...

Epidemiology of cardiomyopathy – A Clinical and Genetic Study of Restrictive Cardiomyopathy: The EPOCH-R Study

Mitali Kapoor
Soumi Das
Amitabh Biswas
Sandeep Seth
Balram Bhargava
Vadlamudi Raghavendra Rao

January 2017

Introduction: Restrictive cardiomyopathy (RCM) is characterized by diastolic dysfunction, biatrial e...

European Cardiomyopathy Pilot Registry: EURObservational Research Programme of the European Society of Cardiology

Perry Elliott
Philippe Charron
Juan Ramon Gimeno Blanes
Luigi Tavazzi
Michal Tendera
Marème Konté
Cécile Laroche
the EORP Cardiomyopathy Registry Pilot Investigators: [Aris Anastasakis
Eloisa Arbustini
Folkert W. Asselbergs
Anna Axelsson
Dulce Brito
Alida L. P. Caforio
Gerald Carr White
Agata Czekaj
Thibaud Damy
Emmanuela Devoto
Valentina Favalli
Iain Findlay
Pablo Garcia Pavia
Albert Hagège
Tiina Heliö
Sabino Iliceto
Richard Isnard
Joeri A. Jansweijer
Giuseppe Limongelli
Ales Linhart
David López Cuenca
Nicolas Mansencal
Pascal McKeown
Jens Mogensen
Saidi A. Mohiddin
Lorenzo Monserrat
Iacopo Olivotto
A. G. Rigopoulos
Stefania Rosmini
Barbara Pfeiffer
Eleanor Wicks]
MAGGIONI, ALDO PIETRO
RAPEZZI, CLAUDIO

January 2016

Cardiomyopathies are a heterogeneous group of disorders associated with premature death due to ventr...

European cardiomyopathy pilot registry: EURObservational research programme of the European society of cardiology

January 2016

Aims: Cardiomyopathies are a heterogeneous group of disorders associated with premature death due to...

European Cardiomyopathy Pilot Registry : EURObservational Research Programme of the European Society of Cardiology

Elliott, Perry
Charron, Philippe
Blanes, Juan Ramon Gimeno
Tavazzi, Luigi
Tendera, Michal
Konté, Marème
Laroche, Cécile
Maggioni, Aldo P
Asselbergs, FW

January 2016

AIMS: Cardiomyopathies are a heterogeneous group of disorders associated with premature death due to...

The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies.

Charron, Philippe
Elliott, Perry M
Gimeno, Juan R
Caforio, Alida L P
Kaski, Juan Pablo
Tavazzi, Luigi
Tendera, Michal
Maupain, Carole
Laroche, Cécile
Rubis, Pawel
Jurcut, Ruxandra
Calò, Leonardo
Heliö, Tiina M
Sinagra, Gianfranco
Zdravkovic, Marija
Kavoliuniene, Aušra
Felix, Stephan B
Grzybowski, Jacek
Losi, Maria-Angela
Asselbergs, Folkert W
García-Pinilla, José Manuel
Salazar-Mendiguchia, Joel
Mizia-Stec, Katarzyna
Maggioni, Aldo P
EORP Cardiomyopathy Registry Investigators

January 2018

The Cardiomyopathy Registry of the EURObservational Research Programme is a prospective, observation...

The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: Baseline data and contemporary management of adult patients with cardiomyopathies

Charron, P
Elliott, PM
Gimeno, JR
Caforio, ALP
Kaski, JP
Tavazzi, L
Tendera, M
Maupain, C
Laroche, C
Rubis, P
Jurcut, R
Cal\uf2, L
Heli\uf6, TM
Sinagra, G
Zdravkovic, M
Kavoliuniene, A
Felix, SB
Grzybowski, J
Losi, MA
Asselbergs, FW
Garc\ueda-Pinilla, JM
Salazar-Mendiguchia, J
Mizia-Stec, K
Maggioni, AP

January 2018

AIMS: The Cardiomyopathy Registry of the EURObservational Research Programme is a prospective, obser...

The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporarymanagement of adult patients with cardiomyopathies

Charron, Philippe
Elliott, Perry M.
Gimeno, Juan R.
Caforio, Alida L. P.
Kaski, Juan Pablo
Tavazzi, Luigi
Tendera, Michal
Maupain, Carole
Laroche, Cécile
Rubis, Pawel
Jurcut, Ruxandra
Calò, Leonardo
Heliö, Tiina M.
Sinagra, Gianfranco
Zdravkovic, Marija
Kavoliuniene, Aušra
Felix, Stephan B.
Grzybowski, Jacek
Losi, Maria-Angela
Asselbergs, Folkert W.
García-Pinilla, José Manuel
Salazar-Mendiguchia, Joel
Mizia-Stec, Katarzyna
Maggioni, Aldo P.
Anastasakis, Aris
Biagini, Elena
Bilinska, Zofia
Castro, Francisco Jose
Celutkiene, Jelena
Chakova, Natalija
Chmielewski, Przemyslaw
Drago, Fabrizio
Frigy, Attila
Frustaci, Andrea
Garcia-Pavia, Pablo
Hinic, Sasa
Kindermann, Ingrid
Limongelli, Giuseppe
Medrano, Constancio
Monserrat, Lorenzo
Olusegun-Joseph, Akinsanya
Ripoll-Vera, Tomas
Lopes, Luis Rocha
Saad, Aly
Sala, Simone
Seferovic, Petar M.
Sepp, Robert
Urbano-Moral, Jose Angel
Villacorta, Eduardo
Wybraniec, Maciej
Yotti, Raquel
Zachara, Elisabetta
Zorio, Esther

January 2018

Aims The Cardiomyopathy Registry of the EURObservational Research Programme is a prospective, observ...

Improving diagnosis and risk stratification across the ejection fraction spectrum: the Maastricht Cardiomyopathy registry

Henkens, M.T.H.M.
Weerts, J.
Verdonschot, J.A.J.
Raafs, A.G.
Stroeks, S.
Sikking, M.A.
Amin, H.
Mourmans, S.G.J.
Geraeds, C.B.G.
Sanders-van Wijk, S.
Aizpurua, A.B.
Uszko-Lencer, N.H.M.K.
Krapels, I.P.C.
Wolffs, P.F.G.
Brunner, H.G.
Leeuwen, R.E.W.
Verhesen, W.
Schalla, S.M.
van Stipdonk, A.W.M.
Knackstedt, C.
Li, X.F.
Hamid, M.A.A.
van Paassen, P.
Hazebroek, M.R.
Vernooy, K.
Brunner-La Rocca, H.P.
van Empel, V.P.M.
Heymans, S.R.B.

April 2022

Aims Heart failure (HF) represents a clinical syndrome resulting from different aetiologies and degr...

Prospective follow-up in various subtypes of cardiomyopathies: Insights from the ESC EORP Cardiomyopathy Registry

Gimeno, J R
Elliott, P M
Tavazzi, L
Tendera, M
Kaski, J P
Laroche, C
Barriales-Villa, R
Seferovic, P
Biagini, E
Arbustini, E
Rocha-Lopes, L
Linhart, A
Mogensen, J
Hagege, A
Espinosa, M A
Saad, A
Maggioni, A P
Caforio, A L P
Charron, Ph

January 2021

The ESC EORP Cardiomyopathy Registry is a prospective multinational registry of consecutive patients...

ESC EORP Cardiomyopathy Registry: real‐life practice of genetic counselling and testing in adult cardiomyopathy patients

Heliö, Tiina
Elliott, Perry
Koskenvuo, Juha,
Gimeno, Juan,
Tavazzi, Luigi
Tendera, Michal
Kaski, Juan Pablo
Mansencal, Nicolas
Bilińska, Zofia
Carr-White, Gerry
Damy, Thibaud
Frustaci, Andrea
Kindermann, Ingrid
Ripoll-Vera, Tomas
Čelutkienė, Jelena
Axelsson, Anna
Lorenzini, Massimiliano
Saad, Aly
Maggioni, Aldo,
Laroche, Cécile
Caforio, Alida L.P.
Charron, Philippe

August 2020

International audienceAims: Cardiomyopathies comprise a heterogeneous group of diseases, often of ge...

Rajaie Cardiomyopathy and Myocarditis Registry: protocol for an observational study

Majid Maleki
Freidoun Noohi
Parham Sadeghipour
Mohammad Mehdi Peighambari
Ahmad Amin
Niloufar Samiee
Majid Haghjoo
Nahid Rezaeian
Saeedeh Mazloomzadeh
Elaheh Baghizadeh
Farnaz Rafiee
Behshid Ghadrdoost

July 2021

Background: Cardiomyopathies are characterized by structural and functional abnormalities of myocard...

ESC EORP Cardiomyopathy Registry: real-life practice of genetic counselling and testing in adult cardiomyopathy patients

Helio T.
Elliott P.
Koskenvuo J. W.
Gimeno J. R.
Tavazzi L.
Tendera M.
Kaski J. P.
Mansencal N.
Bilinska Z.
Carr-White G.
Damy T.
Frustaci A.
Kindermann I.
Ripoll-Vera T.
Celutkiene J.
Axelsson A.
Lorenzini M.
Saad A.
Maggioni A. P.
Laroche C.
Caforio A. L. P.
Charron P.

January 2020

Aims: Cardiomyopathies comprise a heterogeneous group of diseases, often of genetic origin. We asses...

The Netherlands Arrhythmogenic Cardiomyopathy Registry:design and status update

Bosman, L. P.
Verstraelen, T. E.
van Lint, F. H. M.
Cox, M. G. P. J.
Groeneweg, J. A.
Mast, T. P.
van der Zwaag, P. A.
Volders, P. G. A.
Evertz, R.
Wong, L.
de Groot, N. M. S.
Zeppenfeld, K.
van der Heijden, J. F.
van den Berg, M. P.
Wilde, A. A. M.
Asselbergs, F. W.
Hauer, R. N. W.
te Riele, A. S. J. M.
van Tintelen, J. P.
Baas, A. E.
Barge-Schaapveld, D. Q. C. M.
Boekholdt, S. M.
Cramer, M. J. M.
Dooijes, D.
Jongbloed, J. D. H.
Loh, P.
Planken, R. N.
Prakken, N. H. J.
van der Smagt, J. J.
van der Wal, A. C.
Teske, A. J.
van Veen, T. A. B.
Velthuis, B. K.
Vink, A.
Yap, S. C.

October 2019

Background Clinical research on arrhythmogenic cardiomyopathy (ACM) is typically limited by small pa...

Epidemiology of cardiomyopathy – A clinical and genetic study of restrictive cardiomyopathy: The EPOCH-R study

Kapoor, Mitali
Das, Soumi
Biswas, Amitabh
Seth, Sandeep
Bhargava, Balram
Rao, Vadlamudi Raghavendra

January 2017

Introduction: Restrictive cardiomyopathy (RCM) is characterized by diastolic dysfunction, biatrial e...

Epidemiology of cardiomyopathy – A Clinical and Genetic Study of Restrictive Cardiomyopathy: The EPOCH-R Study

Mitali Kapoor
Soumi Das
Amitabh Biswas
Sandeep Seth
Balram Bhargava
Vadlamudi Raghavendra Rao

January 2017

Introduction: Restrictive cardiomyopathy (RCM) is characterized by diastolic dysfunction, biatrial e...

European Cardiomyopathy Pilot Registry: EURObservational Research Programme of the European Society of Cardiology

Abstract

Extracted data

European Cardiomyopathy Pilot Registry: EURObservational Research Programme of the European Society of Cardiology

Abstract

Extracted data

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