Additional file 1: of Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease
- Libby Wood (5722595)
- Guillaume Bassez (115626)
- Corinne Bleyenheuft (5722601)
- Craig Campbell (31310)
- Louise Cossette (5722607)
- Aura Jimenez-Moreno (5722613)
- Yi Dai (47974)
- Hugh Dawkins (3999881)
- Jorge Manera (5722625)
- Celine Dogan (2156554)
- Rasha el Sherif (5722634)
- Barbara Fossati (4439215)
- Caroline Graham (4164355)
- James Hilbert (4860733)
- Kristinia Kastreva (5722643)
- En Kimura (227087)
- Lawrence Korngut (575919)
- Anna Kostera-Pruszczyk (5572262)
- Christopher Lindberg (5722649)
- Bjorn Lindvall (5722652)
- Elizabeth Luebbe (5722655)
- Anna Lusakowska (5722658)
- Radim Mazanec (495967)
- Giovani Meola (5722661)
- Liannna Orlando (5722664)
- Masanori Takahashi (38151)
- Stojan Peric (613901)
- Jack Puymirat (115623)
- Vidosava Rakocevic-Stojanovic (5722667)
- Miriam Rodrigues (5722670)
- Richard Roxburgh (5722673)
- Benedikt Schoser (198716)
- Sonia Segovia (3202509)
- Andriy Shatillo (5722676)
- Simone Thiele (5722682)
- Ivailo Tournev (5722685)
- Baziel van Engelen (5722688)
- Stanislav Vohanka (5722691)
- Hanns LochmĂźller (4418095)
Publication date
September 2018
DOIAbstract
Survey to capture details about the registry, database or mailing list. (PDF 270 kb
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