Disability and disease duration in ALS respondents.

(A) Most ALS respondents had mild or moderate disability (with lower ALSFRS-R inverted scores, on the left), while fewer had severe disability (higher ALSFRS-R inverted scores, on the right). (B) Most ALS respondents completed the questionnaire within four years of being diagnosed. A small number of long-term ALS survivors (on the right) also completed the questionnaire.